Lives unaffected by cystic fibrosis


Cystic Fibrosis Australia has an advocacy strategy designed to ensure …

  • cystic fibrosis is kept top of mind with our politicians and decision makers
  • researchers are professionally drawn to the CF field and become involved
  • funds are forthcoming from the corporate and community sectors for a worthwhile cause and
  • the broad Australian community understands the inequity that surrounds CF.

CFA is a robust and authoritative voice for people with cystic fibrosis and their families, carers, partners and support networks. We are often speaking for the powerless to the powerful.

Government, business and the health and community sectors need to understand and appreciate the challenges people with CF face. This includes key issues such as drug affordability and availability, infection control, gene testing and access to the best medical and allied health services.

Over the past 18 months CFA has driven the following advocacy campaigns.

Ongoing campaigns

Pills to the Pollies

Make your voice heard

Community Videos ‘Why I need Orkambi’

Upcoming campaigns

Siblings Events

NFP forum

Indigenous and Ethnicity Report

Mental Health Roadshow

Previous campaigns

PBAC Consumer Hearing

Oh Oh Oh Orkambi

Canberra Protest

Bronchitol and Pulmozyme

Department of Health and Minister’s Office Stakeholder Meeting

Make an ‘O’ for Orkambi

Christmas Card campaign to Minister for Health and Vertex