Cystic Fibrosis Australia (CFA) works tirelessly to raise the profile of cystic fibrosis (CF) nationally and takes key messages to government, business and the health and community sectors.
CFA has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry, and the media. We also support state and territory CF bodies that provide valuable services to the CF community.
CFA’s advocacy strategy is designed to ensure:
- CF is kept top of mind with our politicians and decision-makers
- researchers are professionally drawn to the CF field and become involved
- funds are forthcoming from the corporate and community sectors for a worthwhile cause and
- the broad Australian community understands the inequity that surrounds CF.
We work tirelessly to raise the profile of CF nationally and take key messages to government, business, and the health and community sectors to ensure these groups understand and appreciate the challenges people with CF face. These include key issues such as drug affordability and availability, mental health, infection control, gene testing, and access to the best medical and allied health services.
As CF drug and treatment development continues at a rapid pace CFA is committed to establishing equitable funding and access for all people with CF. CFA proactively offers innovative solutions to the Federal Government and relevant health bodies to ensure CF remains at the top of the health agenda.
CFA is a robust and authoritative voice for people with CF and their families, carers, partners, and support networks. We are often speaking for the powerless to the powerful. Systemic advocacy and promoting the rights of people with CF is key and since 2016 CFA has established a number of programs to do this. They include:
CFA is a robust and authoritative voice for people with CF and their families, carers, partners, and support networks.
CF CAN Program
CF CAN is the Consumer Advocacy Network set up by CFA in 2015. CF CAN members represent the CF community.
To help advocate, we have collated a range of links and information to help you advocate for our CF Community.