State and Territory Cystic Fibrosis organisations in Australia provide support and services to people with cystic fibrosis (CF), and their carers and families.
This is complemented by a commitment to research and a quality improvement program focusing on improved clinical care for people with cystic fibrosis (CF).
Each State and Territory has a CF organisation devoted to providing a range of support services (CF QLD provides the support and services for those in the Northern Territory). These include counselling, information workshops and seminars, case management, comprehensive home care services and professional development for allied health personnel, financial support to take part in physical activities. This remit also includes information on CF for key milestones in a person’s development. This covers newly diagnosed parents, childhood development, teenagers transitioning from a children’s hospital to an adult hospital and issues people face as an adult with CF.
Services vary across States and Territories depending on availability of funding, gaps in health care service provision, capacity and need. All State and Territory CF organisations are members of Cystic Fibrosis Australia (CFA) and work collaboratively together to increase awareness, provide essential services and support research and advocacy initiatives.
Families affected by CF, and health professionals, are encouraged to access services available from each of the CF organisations below.