Cystic Fibrosis WA
Our mission is to contribute to the social, physical and emotional wellbeing of those affected by cystic fibrosis and to assist in the promotion of research.
Our vision is "Lives unaffected by CF"
Orkambi Update 19 December 2016
Orkambi not listed but all is not lost!
We are stepping up our advocacy campaign for Orkambi. Click here to see how to get involved.
Whilst the decision not to list Orkambi on the PBS is devastating to the CF Community, there are still some 17 CF modifiers in the drug development pipeline, two of which are in their final phase three clinical trials.
PBAC Announcement for Kalydeco and Orkambi 16 December 2016
CFWA has received the disappointing news today from Cystic Fibrosis Australia that the PBAC submission for Kalydeco has been deferred and Orkambi has again not been recommended for reimbursement. Click here for an update from Nettie Burke, CEO CFA.
Kalydeco & Orkambi Update 13 December 2016
Once again we are holding our breath this week as we wait for a ruling from the Pharmaceutical Benefits Advisory Committee (PBAC) regarding the two life extending cystic fibrosis drugs, Kalydeco and Orkambi. Click here for more info.
Cystic Fibrosis WA wins 2016 WA Telstra Business Award!
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