Lives unaffected by cystic fibrosis

Consumer connect

Consumer Connect has been a passion project of Cystic Fibrosis Australia (CFA) and LJ Hooker, brought to life by emerging tech company Co-Star (formerly Padlokt).

Our dreams are the same - to be able to connect people, to break down barriers, to 'unlock the padlock'. The dangers of cross infection has resulted in the CF Community not having the ability to just 'catch up'. 

Join the community today to join forums and chat about what means the most to you, read blogs from the CF Community, specialists and the best from the CF world and most excitingly - connect in real time through our two way live stream conversations. 

What are you waiting for, use your key, unlock your connection.

NEXT SESSION

6.30 pm, Wednesday 15 April 2020 - In A Crisis Ask An Expert

“In a Crisis Ask An Expert” – CF Centre Directors including Sharon Hunt from Westmead will be on Consumer Connect this Wednesday 15 April at 6.30 pm to answer all your questions. Our Paediatric Psychologist will share how to manage children’s fears about what is happening in the world and the changes to their routines.”

 

PAST SESSIONS

6pm AEDT, Wednesday 1 April 2020 … don’t be no fool and miss it!

SPEAKERS:

Michael Doumit – CF Physiotherapist

Anthony Talbot – CF Psychologist

Tamarah Katz – CF Dietitian

CF Health in COVID Lockdown – Mental, Physical and Dietary advice from CF Experts

Coronavirus is a highly serious disease, but not at all unbeatable. Like any health issue it must be approached holistically. We can fight coronavirus on every front, and the more we can bring together specialised knowledge about coronavirus and cystic fibrosis, the more ground we will win. Join us for an in-depth discussion of everything from quarantine diets to apartment-friendly exercises to circadian rhythms and everything in between.

 

Wednesday 24 March 2020
An Evening With Experts

Professors Peter Wark, Adam Jaffe and Peter Middleton will lead a Consumer Connect Session about the Coronavirus and cystic fibrosis.

You can get your questions answered by three of the best clinicians in the country. Also, you will be able to hear from the CF Community first hand and join in the live discussion.

Friday 6 September
Rugby for Research

Rugby for Research was a campaign for CF but not necessarily about CF. First off we experimented with a new fundraising format. The event was not only a panel lunch but also an online simulcast meetup. If you would like to view the Rugby for Research panel discussion on Consumer Connect click here.

3 - 6 August 2019
13th Australasian Cystic Fibrosis Conference

The 13th Australasian Cystic Fibrosis Conference (ACFC) provides a collaborative and educational forum for the CF community and CF professionals to help advance CF research and care. In 2019 our biennial conference brings together health professionals and members of the CF community from around the world to discuss and share ideas on the latest advances in CF research, care and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.  You can watch some of those presentations on Consumer Connect now.

Tuesday 25 June
Food For Thought

Felicity Loel and Lara Mathers, dieticians from Queensland and NSW give you Food for Thought.  Diet is such an important part of CF care and we all know it can be a complicated road to navigate when not only nutrition but also disease plays a part.  From time to time we all need a reminder about the basics and our Food For Thought Consumer Connect session will do just that.

Please click here their step by step guide to choose probiotics.

Monday 11 February
Fertilty and CF - falling pregnant, carrying babies and raising kids with CF Mummy Emmah Evans.

Back by popular demand, the wonderfully candid Emmah Evans is joining us again. Hosted by CFSA EO Julia Langhrehr, Emmah will share her journey of pregnancy with CF, having to deal with her own health issues combined with pregnancy and then raising kids with the fear of the your own health constantly hanging over her head. 

Emmah is vigilant in her compliance with her CF treatment and at the age of 24 she fell pregnant naturally with her first baby. 
After many discussion's with her medical team and her own research, Emmah felt there was not enough information or “positive real” stories about being a Mother with Cystic Fibrosis.
This is when she began her page CF Mummy, a platform where she shares her pregnancy journey as well as life as a CF Mum.

Now a Mother of two Emmah has a new lease on life, a new reason for existence.

And with Orkambi now available and the advancement in Cystic Fibrosis treatment, Emmah is excited to be a positive role model within the CF community as she shares her story in Cystic Fibrosis, pregnancy and Motherhood.

Want to stay up to date with sessions and speakers as they become available? Sign up to be notified when a new event opens for registration. Yes! I want to be notified when new sessions become available>

 

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