CF Community Stories
CF COMMUNITY STORIES
The CF Community Stories serves as a collective voice, bringing together stories and perspectives from those living with or impacted by cystic fibrosis in Australia. It’s a place to connect, reflect, and inspire – offering a glimpse into the highs, lows, and everything in between. Whether discussing emotional resilience, treatment experiences, or personal milestones, this blog celebrates the individuality and strength within the community.
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CF Warrior: Redefining Life and Embracing Every Challenge
22 January 2025 | 6 min read
I’ve never let cystic fibrosis define who I am. Growing up, I was lucky to stay healthy, but I often felt isolated from others with CF and avoided facing my condition as a teenager. As I got older, I decided to own my diagnosis, raising awareness and shattering misconceptions. Despite the challenges of CF, I live an active life – coaching and playing netball, running a club, staying fit, and raising my son. Now, expecting my second child, I prove that CF won’t stop me from chasing my dreams. My message: CF warriors are resilient, and one tough day doesn’t define a lifetime.
Taylor Winstanley
Story
Avery’s Fight for Life: The Harsh Reality of Cystic Fibrosis
13 February 2025 | 6 min read
Avery was born healthy on 04/02/22, but within 24 hours, she needed emergency bowel surgery and was soon diagnosed with cystic fibrosis (CF). Despite multiple surgeries, hospital stays, and starting Trikafta, Avery continues to face serious health challenges, including DIOS and respiratory failure. Her story highlights the difficult reality of CF and the need for better awareness and support.
Kaitlyn Ross
Story
Defying the Odds: My Journey with Cystic Fibrosis
22 January 2025 | 7 min read
Living with cystic fibrosis, I’ve endured years of hospital stays, surgeries, and daily medications just to maintain stability. I manage CF-related diabetes, take up to 15 tablets a day to digest food, and maintain 70% lung function, a strong outcome given the challenges. Although I’m ineligible for Trikafta under the PBS due to a rare genetic mutation, a recent trial showed immediate, life-changing improvements.
Sarah
Story
Beyond CF: A Life Without Limits
2 February 2025 | 4 min read
Born with cystic fibrosis, I was told my limits – but I never listened. With my family’s support, I played sports, chased adventure, and refused to let CF define me. Now a teacher and marathon runner, I live proof that no obstacle is too great to overcome.
Abbi
Story
Breathing Through the Storm: My Journey with Cystic Fibrosis
29 January 2025 | 5 min read
I was diagnosed with cystic fibrosis a few weeks after birth and have lived with it for 37 years. Despite challenges, I’ve always stayed positive and resilient. After two high-risk pregnancies and a double lung transplant in September 2024, my life has completely changed. I’m now a healthier, happier mum to two boys, living life to the fullest and grateful for every moment.
Diannah Melluzzo
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