Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 37 to 50 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
These groups understand and appreciate the tribulations confronting people with CF. Challenges facing people with cystic fibrosis include drug affordability and availability, appropriate mental health services, infection control, gene testing and access to the best medical and allied health services.
CFA also supports state and territory cystic fibrosis bodies that provide valuable services to the CF community.
CFA are committed to having ongoing advocacy programs throughout the year.
CF CAN is the Consumer Advocacy Network set up by CFA in 2015.
If you are aged 18 years or over, speak English and you have ever attended a genetic clinic/genetic counselling service in NSW or the ACT for yourself and/or your child(ren), you are invited to participate in a Master of Genetic Counselling research study.
Health Minister Greg Hunt says providing fast access for Australians with cystic fibrosis to Vertex's latest therapy Orkambi is keeping him awake at night