Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2026.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
These groups understand and appreciate the tribulations confronting people with CF. Challenges facing people with cystic fibrosis include drug affordability and availability, appropriate mental health services, infection control, gene testing and access to the best medical and allied health services.
CFA also supports state and territory cystic fibrosis bodies that provide valuable services to the CF community.
CFA are committed to having ongoing advocacy programs throughout the year.
CF CAN is the Consumer Advocacy Network set up by CFA in 2015.
Emily Naismith is a writer who lives in Melbourne with her husband and toddler. She shares her CF story about experiencing IVF, pregnancy and the early days of motherhood.
Standing up for yourself can be challenging. Knowing how best to approach an issue that concerns you or how to ask for more information or support can be difficult to navigate. But with some preparation and planning, you can be your own advocate.