Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
The Australian Cystic Fibrosis Clinical Trials Portal is a great way to find clinical trials you or your child might be interested in. You can also sign up for email alerts when new trials are beginning.
Your care team can help you consider the pros and cons of whether participation in a clinical trial is right for you or your child.
If you would like to participate in a clinical trial, simply talk to your care team. Your CF doctor can help you find trials you or your child might be eligible for.
If there are no studies at your CF centre, a referral can be made so you can participate in a study at another CF centre while you continue to receive your care at your care centre.
Do you want to be notified when a new CF trial is posted? Sign up by sending CFA an email and alerts will be sent directly to your inbox when new trials are posted or when results from a trial are released.
You’re also welcome to check the list of Current and Upcoming Approved Clinical Trials, which can be found here>. Australian Clinical Trials website can be found here>.
If you or your child are not eligible for a clinical trial at your local care centre, ask your care team if there is a trial at another centre that’s applicable. You may receive compensation for travel costs, which could even include airfare and hotel stay.
Your care centre will still be your primary care centre and you will need to continue going there for the management of your disease.