Lives unaffected by cystic fibrosis

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Who we are
- Cystic Fibrosis Australia
  
  Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
  
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  The Federation
  
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  Our Partners
  
  Our Community Fundraisers
  
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  Support & Services
  
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What we do
- Cystic Fibrosis around Australia
  
  Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 37 to 50 years by 2025.
  
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  Consumer Connect
  
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  Clinical Trials and Drug Development
  
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About CF
- Learn about Cystic Fibrosis
  
  Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
  
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  What is CF
  
  COVID-19
  
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Get Involved
- Join the fight against CF
  
  In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
  
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Advocacy
- Educating to create change
  
  Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
  
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  Not For Profit Forum
  
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  Research
Research
- Helping to find a cure
  
  The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
  
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  Research Review
  
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Media Room
- Get informed!
  
  Visit the media room to browse through number of resources including media representatives, press releases and reports.
  
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  Media team
  
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Contact

Clinical Trials 101

To help dispel any anxieties you may have when it comes to clinical research this section will cover the basics you need to know. We will also guide you through how to find a clinical trial that is suitable for you.

What You Need To Know

Article

Why Particpate in a Clinical Trial?

To help dispel any anxieties you may have when it comes to clinical research this section will cover the basics you need to know. We will also guide you through how to find a clinical trial that is suitable for you.

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Article

How do Clinical Trials Work?

Each clinical trial has a study sponsor and a protocol. Potential drugs must move through four well-defined phases of testing in patients.

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Article

Informed Consent: Your rights are protected.

Choosing to volunteer in a cystic fibrosis study is a personal decision. Through a process called informed consent, people with CF and their families can find out all the information they need, get answers to their questions and learn key facts about a clinical study.

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Article

Patient Safety Is a Priority

Nothing is more important than patient safety in developing new CF treatments.

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Article

Clinical trials versus studies

Is there a difference?

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Article

Children with CF and clinical trials

What every parent needs to know

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Article

How do I find a clinical trial and stay informed?

The Australian Cystic Fibrosis Clinical Trials Portal is a great way to find clinical trials you or your child might be interested in. You can also sign up for email alerts when new trials are beginning.

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