Lives unaffected by cystic fibrosis

Clinical Improvement

Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through our clinical improvement programmes and research. 

We are committed to the goal of extending life expectancy from 37 to 50 years by 2025. To achieve this we maintain our quest for funding to ensure our clinical improvement assets such continue to thrive.

These include the Australian Cystic Fibrosis Data Registry (ACFDR), Peer Reviews, Standards of Care, Infection Control Guidelines, Transition Guidelines and Centre Directors Forums.

Everyone at CFA is focused on fulfilling our mission to deliver clinical improvement and research as the peak national body, supporting state and territory members with their goals to enhance the quality of life of people with cystic fibrosis.

If you would like to support CFA’s Clinical Improvement initiatives such as the Data Registry, Peer Reviews and Infection Control Guidelines please donate here>


Standards of Care


Cystic Fibrosis Australia released the first Australian Standards of Cystic Fibrosis Care Guidelines in 2008 addressing needs unique to Australia. This spectrum of concerns includes Facilities and Staffing, Services, Newly Diagnosed Children, Newly Diagnosed Adolescents and Adults, Outpatient Care, Inpatient Care, Home Therapy, Transition Care, Outreach Services and Care, Transplantation and End of Life Care and the Role of the CF Organisations.

The Guidelines are currently under review and the new guidelines are expected to be complete before the end of the year. There will be additional chapters as well as a review of all existing content.

Resources

Infection Control Guidelines

Infection Control Guidelines for People with Cystic Fibrosis and Carers.

Download the Guidelines (PDF)

Infection Control Policy

In September 2015, the Infection Control Policy was reviewed. The following as a guide for all CF events.

Download the Guidelines (PDF)

Nutrition Guidelines for Cystic Fibrosis

The Nutrition Guidelines for Cystic Fibrosis in Australia and New Zealand were developed and written by dietitians experienced in the field of this disease.

Download the Guidelines (PDF)

Standards of Care

Cystic Fibrosis Australia released of the first Standards of Cystic Fibrosis Care Guidelines to be published in Australia in 2008. The Steering Committee worked together to complete the document and deliver to the Cystic Fibrosis community guidelines relevant to our unique needs in Australia. The specific areas covered are; Facilities and Staffing, Services, Newly Diagnosed Children, Newly Diagnosed Adolescents and Adults, Outpatient Care, Inpatient Care, Home Therapy, Transition Care, Outreach Services and Care, Transplantation and End of Life Care and the Role of the CF Organisations.

Download the Standards of Care (PDF)

Australasian Social Work Guidelines

This document represents the first set of comprehensive clinical guidelines for social work in cystic fibrosis (CF) in Australia and New Zealand.

Download the Australasian Social Work Guidelines (PDF)

Physiotherapy for Cystic Fibrosis

Additional Guidelines Currently In Development

September 2018 - The Transition Guidelines are currently under construction