Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
Cystic fibrosis (CF) does not only complicate the body’s ability to access nutrients from food. Nutrients and salt are also lost from the body when we sweat. Cystic fibrosis tends to impair the chloride channels in our skin - cellular channels that re-absorb sweat from our skin during the cooling process.
Crucial minerals are lost this way from the bodies of CF individuals. Often these elements must be constantly artificially replaced. This problem is unique to individuals living with CF.
Attempts have been made in the last ten years to better understand the interactivity of CF with other medical conditions.
There are other common conditions, like Eczema and Dermatitis, which CF-related complications in the sweat glands can cause or exacerbate.
Piecing together these small pieces of the puzzle helps build a deeper understanding of both conditions as a whole and hints at the crucial nature of exploring co-morbidities.
CF and Sweat:
https://cysticfibrosisnewstoday.com/2016/11/30/wearable-patch-analyzes-sweat-chloride-levels-overall-health/
https://cysticfibrosisnewstoday.com/2018/02/02/cystic-fibrosis-sweat-test-is-reliable-down-syndrome-patients/
https://bit.ly/3fLfNh7
https://jamanetwork.com/journals/jamadermatology/fullarticle/209551
https://pubmed.ncbi.nlm.nih.gov/1417024/