Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
Adequate nutrition is one of the most important aspects of cystic fibrosis (CF) care. Since the 1970’s it has been recognised that adequate nutrition is associated with vastly improved outcomes for people with CF.
There are multiple challenges to providing adequate nutrition such as pancreatic insufficiency making it hard to absorb fat, an increased metabolic rate, and frequently issues such as nausea reducing appetite.
The body’s immune system is seriously compromised by CF-related nutritional deficits, not to mention muscle growth and bone density.
In addition to nutrition there are several other issues with the stomach and digestive system relevant to people with CF. As mentioned, nausea is a common problem as are stomach pain and bloating. Identifying ways of managing these symptoms was highlighted as one of the top research priorities by families and health professionals.
Constipation is another common issues and frequently requires patients and families to monitor and adjust treatment. Another complication is known as Distal Intestinal Obstruction Syndrome, which is unique to CF, and presents with a severe pain and vomiting and often requires management in hospital.
CF and Nutrition:
The new nutrition guidelines from Australia and US