Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
Individuals with cystic fibrosis (CF) can often experience a blockage of the vas deferens, leading to infertility.
Congenital bilateral absence of the vas deferens is also common, where the vas deferens is missing completely.
IVF and sperm retrieval are still viable options for most males with CF, but it is important to consult with a urologist or fertility specialist on these decisions.
It is clear that males with CF share fertility issues that are also common in the general population. However there is no currently agreed upon link between CF and impaired sperm count.
Reproductive issues can have pronounced impacts on mental health and an individual’s relationships, and so it is important to be sensitive to the increased risk of reproductive issues in the CF Community.
https://cysticfibrosisnewstoday.com/2019/06/24/infertility-cf-masculinity-vas-deferens/
https://www.cff.org/Life-With-CF/Transitions/Reproductive-Health-and-Fertility/CF-and-the-Male-Reproductive-System/Fertility-in-Men-With-CF/
https://www.cysticfibrosis.org.au/getmedia/9df47f23-5e9b-4329-a390-8a6590620055/JCF-D-20-00080R1_FINAL_Rotolo_230520-(002).pdf.aspx?ext=.pdf