Lives unaffected by cystic fibrosis

Siblings Gathering - Raw, unfiltered and filled with love

On Monday 25 June, Cystic Fibrosis Australia hosted a special Siblings Gathering in Parliament House.

Emotions were electrified at the recent Siblings’ Gathering at Parliament House in Canberra.

The Minister for Health, Greg Hunt opened the event and confirmed that if the PBAC recommends ORKAMBI for reimbursement then the Government would fund it immediately.

Heartfelt speeches from the day can be viewed below.

Anna Knuckey

Anna and her sister Janette have always been close in age and thick as thieves. Both had their own challenges growing up, Janette with all of the challenges CF brings, in this beautiful video Anna bares her heart and soul on growing up as the 'healthy one'.

Katie and Jessica Down

Sisters Katie and Jessica share stories of their childhood and their dreams of growing old together.

The Hon. Greg Hunt MP

Health Minister The Hon. Greg Hunt MP opened the event, welcoming siblings and family members who travelled to join the event. He also spoke of his support for Orkambi.

Judith Glazner

Judith Glazner from the Royal Children’s Hospital in Melbourne shared findings from her recent PHD that looked at sibling mental health in CF families.