Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
Emotions were electrified at the recent Siblings’ Gathering at Parliament House in Canberra.
The Minister for Health, Greg Hunt opened the event and confirmed that if the PBAC recommends ORKAMBI for reimbursement then the Government would fund it immediately.
Heartfelt speeches from the day can be viewed below.
Anna and her sister Janette have always been close in age and thick as thieves. Both had their own challenges growing up, Janette with all of the challenges CF brings, in this beautiful video Anna bares her heart and soul on growing up as the 'healthy one'.
Sisters Katie and Jessica share stories of their childhood and their dreams of growing old together.
Health Minister The Hon. Greg Hunt MP opened the event, welcoming siblings and family members who travelled to join the event. He also spoke of his support for Orkambi.
Judith Glazner from the Royal Children’s Hospital in Melbourne shared findings from her recent PHD that looked at sibling mental health in CF families.