You may be eligible for a variety of allowances through Centrelink
- Disability Support Pension (DSP): To be eligible for this pension you must be 16 years or older and not able to work more than 15 hours per week. To assess your eligibility for DSP, a report from your treating doctor or specialist on your disability, injury or illness is required. It will also request a work and medical assessment. You may be required to enrol in a Program of Support.
- Sickness Allowance: For when you are temporarily unable to work because of a medical condition. You are eligible if you if you are employed, including self-employment.
- Essential Medical Equipment Payment: An annual payment of $154.00 which assists with extra costs associated with essential medical equipment such as home ventilators, oxygen concentrator and nebulisers.
- Pharmaceutical Benefit Scheme Safety Net (PBS): Assists with the costs of medications after you reach a certain monetary threshold. For general patients it is $1,521.80 and for concession card holders this is $384.00. Once the threshold is met the cost of medications is $6.40 for general patients and free for concession holders.
Work and Study
- Mobility Allowance: Helps people with a chronic health condition who are working and are unable to use public transport due to needing assistance or concerns about infection control. It is not means tested.
- Newstart Allowance (21 years over): If you are unemployed, Newstart Allowance provides financial support while you are looking for work.
- Youth Allowance (16 – 24 years): Eligibility is you must be a young person who is studying, undertaking training or an Australian Apprenticeship, looking for work, or if you are sick.
- Special Benefit: For if you are in severe financial need due to circumstances outside your control and you cannot receive any other Centrelink pension or benefit.
- Austudy: provides financial help if you are aged 25 years or more and are studying or undertaking an Australian Apprenticeship full-time.
- Carer Allowance: Parents of children with CF automatically become eligible for the carers allowance and health care card. When your child turns 16 you will still be eligible if they are continuing studying or doing an apprenticeship. You may also be eligible for this allowance if you are caring for an adult with CF. Additional eligibility is you must be an Australian resident.
- Carers Payment: An income tested benefit, for carers who are providing constant care in the home for someone with a severe disability or severe illness.
- Carer Adjustment Payment: A one-off payment of up to $10,000 dollars for families who are experiencing extreme hardship. Additional eligibility criteria required.
More information about Centrelink benefits and allowances can be found here
- Centrelink: There are two main types of concession cards that Centrelink providers: Health Care Card and the Pensioner Concession Card. Concessions may include a reduction on many bills, including medical bills and pharmaceuticals.
- Companion Card: Managed by National Disability Services to assist people with a significant permanent disability who require a care support person or a companion.
Transport, Parking & Accommodation
- Isolated Patient Transport and Accommodation Assistance Scheme For NSW or Lord Howe Island residents who live more than 100km for their treatment specialist or their combined trips to treatment specialists exceed 200kms a week. Doctor referral is required, and your specialist will need to complete part 3 of this form.
- Transport Disability Incentives and Subsides This scheme provides support to NSW residents who are unable to use public transport due to a disability. It is not means tested but has other eligibility requirements.
- Westmead Adult Clinic Concession Parking Concession parking is available to long-term patients and their carers who attend the hospital more than once a week, patients who need to attend more than twice a week, for people experiencing financial hardship and for people with a healthcare card, pensioner concession card, gold veterans affair card or an RMS mobility parking permit.
- Royal Prince Alfred Hospital Adult Clinic Concession Parking Concession parking is available to patients who attend hospital longer than one week, who attend more than twice weekly or who may attend cardiac rehabilitation education, exercise classes or health promotion classes. Other eligibility requirements are you hold a current health care card, blue pensioner concession card, gold veterans affair card or an RMS mobility parking permit.
- Sydney Children’s Hospital Network Concessions are available. SCHN recommend you speak with your Clinical Support Administrator.
- Centrelink Rent Assistance Available if you are receiving a Centrelink payment which is more than the base rate of Family Tax Benefit and pay rent.
- Housing Pathways Private rental assistance and social housing assistance for Australian citizens or permanent residents residing in NSW who meet income eligibility.
Energy Rebates and Energy Accounts Payment Assistance (EAPA) Scheme
- NSW Gas Rebate: Helps eligible NSW households pay their natural gas bill.
- Family Energy Rebate: Help NSW family households with dependent children who have received the Family Tax Benefit payment from the Federal Department of Human Services.
- Low Income Household Rebate: Assists individuals who hold eligible concessions cards issued but the Federal Department of Human Services or the Department of Veterans Affairs.
- Life Support Rebate: Assists families and individuals to pay electricity bill if they are required to use an approved energy-intensive equipment in the home such as oxygen, enteral feeding, TPN, CPAP, BiPAP, and other equipment.
- Medical Energy Rebate: helps individuals who are unable to regulate body temperature in extreme (hot or cold) temperatures.
- Energy Accounts Payment Assistance (EAPA) Scheme: Helps individuals and families when they are experiencing a short term financial crisis or emergency to pay their gas or electricity bill.
For more information about rebates please visit here
Public dental care is available to NSW residents who reside within the boundary of a Local Health District. For children and young persons to be eligible they must have for a Medicare care and be less than 18 years of age. For adults they must also meet the children’s requirements and hold or be listed as a dependent on a Health Care Card, Pensioners Concession Card or a Commonwealth Seniors Health Card.
Chronic Disease Management Plan for Allied Health Services
A Medicare rebate is available for a maximum of five services per patient each calendar year. It includes physiotherapy and psychology services. There will be a gap to pay depending on how much the provider charges. Ask your GP if you would like to access this program.
Continence Financial Support
Most people with incontinence use continence products such as pads, catheters or bedding protection to manage their condition. Some people require these products on a long-term basis, which can become very expensive. For more information visit the Continence Foundation of Australia website or contact a continence nurse advisor at the National Continence Helpline on 1800 33 00 66.
Angel Flight coordinates non-emergency flights to assist country people to access speciality medical treatment. All flights are free and may involve travel to medical facilities anywhere in Australia. If you are interested in a referral, please speak with CFCC NSW Programs and Support Services staff. For more information click here
Variety Smile Medical Support Program Grant
Variety New South Wales provides individual grants to children ages 0-18 years who are living with a chronic illness or disability. Grants areas are mobility equipment, vehicle modification, nutritional feeds and nappies, wigs, medical equipment, technology, educational resources and rare disease. If approved, the grant may be claimed by sending in receipts for reimbursement, or for more expensive items the supplier may be paid directly. If you are interested in a referral please contact: email@example.com
Ronald McDonald Family Retreats
Six holiday retreats throughout Australia are available for families of children with a serious illness. For more information click here. If you are interested in a referral please contact: firstname.lastname@example.org
Ronald McDonald House
Ronald McDonald Charities has several houses in NSW locations such as Westmead, Wagga Wagga, Tamworth, Randwick, Newcastle, and Orange. Some locations require a referral from a medical provider. Please click here to review the individual location by clicking on the link and selecting “Staying with Us” - For more information click here.
Yurana Holiday Homes
Located in Ulladulla, NSW, Yurana provides a range of holiday accommodation for children affected with serious illness. If you would like a referral please contact: email@example.com.
Located in Shoalhaven Heads, NSW, The Shack provides low-cost accommodation for children experiencing chronic illness. If you would like a referral please contact: firstname.lastname@example.org.
Community Aid Agencies
- Salvation Army: 13 72 58
- St Vincent De Paul Society: 1 300 VINNIES (846 6437)
- Benevolent Society: 1 800 236 762
- Carer NSW: 1 800 242 636
- NSW Domestic Violence Line: 1 800 656 463
- Homelessness: Link2Home 1800 152 152
- Lifeline: 13 11 14
- Beyondblue: 1 300 22 4636
- Kids Helpline: 1800 55 1800