Lives unaffected by cystic fibrosis

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CFSA Member Services

As a member of CFSA, you or your partner/ family member can access our programs and services to make living with CF that little bit easier. 

Members can access: 

  • Emergency financial assistance 
  • Pharmacy, fitness, and education support 
  • Family and sibling support/respite activities 
  • Medical equipment support and hire 
  • Counselling services 
  • Inpatient services 
  • Research updates 
  • Quarterly Rose Report newsletter 

Annual CFSA membership is $25 for individual adults with CF or $40 for a family membership. Click here to sign up as a valued member of CFSA! 

Some services have specific criteria,  please contact the Nicky Titchener, Community Support Officer for details. ntitchener@cfsa.org.au or 8221 5595

Sometimes hospital visits can be dull and lonely. CFSA staff will visit you or your child in hospital when needed. We also provide inpatients with age appropriate Boredom Buster Bags to keep them occupied during their hospital admission. 

CFSA has a laptop with wireless Internet connection which is available for use by inpatients in WCH and RAH (hire conditions apply). Members of CFSA who are inpatients at the RAH can be financially reimbursed for part of the cost of internet usage and TV rental

CFSA has the following equipment available for hire for children and adults living with CF: 

  • Pari Boy SX compressor (for everyday use) 
  • Medics World Traveller compressor  
  • Two Pari Mobile S nebulisers (ideal for travel) 
  • Exercise bike (for 16+) 

Members can hire the above equipment for a small monthly fee and a refundable $100 deposit. For availability and information on which nebuliser would best suit your needs contact CFSA. 

The physical effects and medical costs associated with CF can be overwhelming. CFSA offers a range of subsidies to individuals with CF and their families to assist with expenses in maintaining health and wellbeing. 

  • Emergency financial assistance for essential services such as utility bills
  • Equipment subsidies for the cost of medical equipment (nebulisers, physio tables) 
  • Transplant assistance to help with the cost of relocation and living interstate during lung transplantation and recovery
  • Junior fitness subsidy for under 16 year olds to assist with costs of sports equipment, required clothing, registration fees or lessons 
  • Hospital in the Home and pre-transplant house cleaning and meal delivery 
  • Partial reimbursement for the cost of CF related medications
  • The cost of gym membership, the purchase of gym equipment and/or sports club fees 
  • Education grants for adults with CF who are pursuing post-high school studies
  • Careers guidance grant to assist those looking for training and employment 

Please note some subsidies have eligibility requirements which members must meet in order to access the service. If you would like more information about financial assistance please contact the CFSA office. 

Receiving a diagnosis of CF can be a very stressful time for families. There is so much new information to process in the unfamiliar environment of a hospital. 

CFSA supports individuals and families and can assist them in understanding what the diagnosis means. We assist by providing opportunities to talk with and meet other parents and attend activities and seminars to learn about and feel part of the new community. 

Those families who experience a new diagnosis will also receive a welcome pack full of practical and fun things to make it easier for those living with or supporting someone with CF. 

Being a parent and/or carer for a person with CF is a demanding role. It involves managing treatment and medications, advocating for your child’s welfare, and of course just enjoying time with them.  

CFSA recognises the challenges and provides various supports for parents, grandparents and carers such as: 

  • Information, resources and updates about CF  
  • Network support to link with other parents, grandparents and carers  
  • Mums', Dads' and Grandparents' days out
  • Regular parent dinners   

Next Parent Dinner:  

Next Grandparents' Day Out:  5th May 2018

Mums' and Dads' Day Out: 

Siblings and offspring of people with CF can often feel left out. CFSA offers three activities each year for siblings and offspring aged 7-17 to build confidence, self-esteem, and social skills. It provides young people with the chance to share their experiences and have some fun with other young carers. 

If your child is interested in attending one of these fun activities please contact Nicky Titchener at ntitchener@cfsa.org.au for more information.  

CFSA can also provide educational resources for young siblings and offspring to help improve their understanding of the condition and the role they can play in supporting their brother, sister or parent. 

Little Day Out is a program aimed at giving children and families the opportunity to share a fun family day out and take a break from the ongoing pressures of living with CF. Sponsored by the Little Heroes Foundation, CFSA will cover the costs of an activity of your choosing.  

Your imagination is your only limitation! Activities include: 

  • Pass to the Adelaide Zoo or Monarto Zoo 
  • Adelaide Crows or Port Power game tickets 
  • Special family meal 
  • Accommodation for a weekend away
  • Movie tickets
  • Tenpin bowling 
  • Mini golf 

Dealing with CF can be difficult and emotionally draining. If you feel that you or someone in your family could benefit from counselling, CFSA can provide access to mentors or support groups of similar ages and experiences. We can also provide referrals to qualified counsellors. 

CFSA offers CPR training with St John Ambulance in your local area for $65 per family. CPR training is a prerequisite for parents using the Hospital in the Home service provided by the WCH. Please contact Robyn at rcraig@cfsa.org.au for further information.