It’s official … ORKAMBI is back on the PBAC Agenda and it’s now or never for the cystic fibrosis (CF) community to unite and fight for what is rightfully ours. For too long now our community’s voice has been ignored so on 30th April Cystic Fibrosis Australia (CFA) together with the CF community will march on Vertex Headquarter in St Leonards.
The Protest March will muster in Martin Place from 7.00am on Monday 30th April and at 9.00am we will begin our 6.5km trek to Vertex. We need a big crowd to make a big noise and a big statement that cannot be ignored. “We need access to life saving drugs,” said Nettie Burke, CEO of CFA. We have lots planned and we will share over the next week what will be happening.
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