Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 37 to 50 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
This year our CF Community Conference was held in Melbourne on Saturday 22 September 2018
Our Community Conference aims to bring people from the Victorian and NSW CF community up-to-date with latest developments and to provide opportunities for discussion with medical and health experts and those affected by CF.
Download the conference program (Last updated 21 Sep 2018)
If you have any questions please contact email@example.com or phone (03) 9686 1811.
Some of the slides used by our speakers are available to download as a PDF below.
Advances in treatment and care
Associate Professor David Armstrong
Director Paediatric Respiratory Medicine/CF, Monash Health
Government concessions and benefits (and a few more)
Cindy Van Rooy
Programs & Support Services (Vic), Cystic Fibrosis Community Care
CF and mental health
Cystic Fibrosis Clinical Nurse Consultant, Royal Children’s Hospital
Getting the best educational and CF support for your child – from child care to high school
Education Support Coordinator, Cystic Fibrosis Community Care
Your CF transition from child to adult care: Challenges, developments and learnings
Transition Support Service Manager, Royal Children’s Hospital Melbourne
Thank you to our generous supporters and sponsors
Major Sponsor - Technipro PulmoMed Pty Ltd
Supporting Partner - Philips Sleep and Respiratory Care
CFCC acknowledges the support of the Victorian Government