Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 47 to 55 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
The 12th Australasian Cystic Fibrosis Conference (ACFC) provides a collaborative and educational forum for CF professionals to help advance CF research and care. This annual meeting brings together scientists, clinicians and caregivers from around the world to discuss and share ideas on the latest advances in CF research, care and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.
The 12th Australasian Cystic Fibrosis Conference - Optimism, Opportunities, Outcomes, will take place at the Crown Promenade Hotel, Melbourne.
The Lay Conference kicks off Saturday 5 August with registrations opening from 7:30am and the official opening at 9am. There is also a dinner for the Lay community in the evening of Saturday 5 August (if you would like to purchase a ticket to the dinner and did not do so with your registration, please contact the CFA office on +6 2 9889 5171), with all sessions finishing on Sunday 6 August.
The Medical Conference runs from Sunday 6 August with registrations opening from 7:30am and the official opening from 1pm. There is also a medical celebration event in the evening of Monday 7 August (if you would like to purchase a ticket to the celebration and did not do so with your registration, please contact the CFA office on +6 2 9889 5171), with all sessions finishing on Tuesday 8 August.
The conference is Australasia's largest event dedicated to cystic fibrosis (CF) and will bring together around 200 lay people and over 350 medical, allied health and nursing delegates plus CF researchers from across the region and around the world.
Over the four days lay and medical sessions will be held, illuminating the very latest CF research and innovation in treatment and care. As Chair of the 2017 ACFC Associate Professor Sarath Ranganathan, Director of Respiratory Medicine, Royal Children's Hospital Melbourne, has brought together a committee of CF specialists from a variety of backgrounds. They are planning a valuable and vibrant program that celebrates both Australasian and international breakthroughs, innovative treatments and research.
The CEO of Cystic Fibrosis Community Care Karin Knoester will chair the Lay Committee and again the opportunities for education, peer support and consumer engagement will be compelling sessions with highly valuable outcomes.
Join us in Melbourne in August 2017 for what promises to be a highly informative and stimulating event for our CF community, clinicians, allied health practitioners, nurses and researchers.
Download the poster.
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Conference information including speaker bios, up to date schedules and much more can be accessed via the ACFC app. Simply open the following on any device: tiny.cc/eventbriefcase and enter the following event ID 3005-7123 (you will only have to do this once) to access all areas. (Don’t forget to add the page to your home screen for quick access).