Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
Every four days a baby is born in Australia with cystic fibrosis (CF) and more than one million Australians are carriers of cystic fibrosis. Cystic Fibrosis Australia (CFA) is committed to improving clinical practice and patient outcomes through its quality improvement programmes and research with the aim of extending life expectancy from 37 to 50 years by 2025.
Cystic Fibrosis is a recessive genetic condition. It primarily affects the lungs and digestive system because of a malfunction in the exocrine system, responsible for producing saliva, sweat, tears and mucus.
In addition to working for a cure, Cystic Fibrosis Australia also provides support and advocacy to improve the lives of people with cystic fibrosis. Get involved by raising awareness about CF, participating in a fundraising event or volunteering.
Cystic Fibrosis Australia has established a consistent approach to advocacy across Australia and is now a subject matter expert for government, industry and the media.
The Australian Cystic Fibrosis Research Trust (ACFRT) is managed by Cystic Fibrosis Australia (CFA). Since 1989 it has funded more than 300 projects valued at over $6,000,000.
Visit the media room to browse through number of resources including media representatives, press releases and reports.
There Is No Present Like Time
There Is No Time Like The Present
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COMMUNIQUE'S 12 January 2020 - Close Enough To Taste It > 23 December 2020 - Trikafta is on the PBAC March Agenda > 17 December 2020 - Wish List > 5 December 2020 - The Path > 23 November 2020 - Homework > 17 November 2020 - There is No Time Like the Present and There is no Present Like Time > 4 November 2020 - Milestones and Journeys > 28 August 2020 - Tracking Trikafta >
MEDIA RELEASES 23 December 2020 - On The Agenda At Last > 16 December 2020 - Talk To Those Who Know > 5 November 2020 - Milestones that must be met >
LETTERS TO MEMBERS OF PARLIAMENT & SENATORS New Year Letter to Politicians > Letter to Politicians from Community > 8 December 2020 - Christmas letter to Members & Senators from CFA > Christmas Letter to politicians from Community >
To contact a Member of Parliament or Senator please CLICK HERE to find a list of their details.