Lives unaffected by cystic fibrosis


Cystic Fibrosis Australia Advocacy
National Disability Insurance Scheme (NDIS)

The Cystic Fibrosis (CF) Federation of patient organisations and the Cystic Fibrosis community recently prepared submissions for the Joint Standing Committee on the National Disability Insurance Scheme (NDIS) requesting that cystic fibrosis (CF) be included as a disability type in the NDIS.

We welcomed the opportunity and it is pleasing that there is an appetite for inclusion and change. It is important that people with rare diseases and conditions where there is high and unmet need are equitably supported. 

The Cystic Fibrosis (CF) Community is collectively an active and forceful advocate for disability support equity and we believe it is fair that people with CF receive the same support as other Australians with the same challenges.

The CF Community has a wealth of knowledge and real-life experiences and we are very happy to share these with The Minister for the NDIS Anne Rushton, NDIA personnel and the media to benefit people with CF in desperate need.

NDIS Advocacy Plan - October 2020 >