While the treatments and routines vary dramatically from person to person, living with CF is all about the routine – mainly in the morning and night time, but constantly throughout each day. This routine can consist of one or two nebulisers every morning and every night with physio sessions in between plus up to 40 tablets per day including antibiotics some containing enzymes that aid in food metabolism.
On top of this there is the constant need to incorporate exercise into each day to keep the lungs active, making sure you eat enough nutrients and healthy fats to maintain a healthy body weight and avoid malnutrition.
It is because of the advancements in medical research that there is the option to treat people with CF from home and increase their quality of life.
For everyone with CF It is important to keep well rested and keep on top of things. Of course it’s harder for some than it is others, but the common denominator is it’s a full time job. If they let their guard down and don’t keep up this routine, people living with CF will find themselves in hospital. Hospitalisations can consist of at least two weeks including procedures such as intense physio therapy and strong antibiotics administered through an IV drip. People with CF can be admitted into hospital up to six times per year.
Outside of hospital there are specialist and CF specific clinics where people with CF visit regularly to be tested and monitor their health.
This information is just the basic outline of living with CF – each individual can have more or less to juggle every day on top of going to school or trying to maintain a full time job.