Cystic Fibrosis Australia, along with all State and Territory oragnisations have produced a range of material that can be downloaded about cystic fibrosis, advice on nutrition, exercise, ages and stages and more.
For the latest statistical information on cystic fibrosis (CF) in Australia including the prevalence and outcomes of various treatments, you can download the latest Data Registry Report.
On this page:
Carrier Screening and diagnosis
-
New Diagnosis Information for Parents
Cystic Fibrosis (CF) is an inherited condition that affects many organs in the body. The organs most affected are the lungs and gut.
Download Brochure
-
Carrier Screening
Are you thinking about having a family? Carrier screening services are available in Australia to help you be informed and understand your options.
Download Brochure
-
Sweat Test
A test to measure the amount of chloride (from salt) in the sweat of people suspected of having cystic fibrosis (CF).
Download Brochure
Medications and Procedures
-
Pill Swallowing
Swallowing tablets and capsules is a skill that can be learned. Some learn faster than others.
Download Brochure
-
Medications
Medications help people with cystic fibrosis (CF) keep healthy and have a good lifestyle.
Download Brochure
-
PEG (Percutaneous Endoscopic Gastrostomy)
In children and adults with cystic fibrosis, maintaining optimal nutrition may be problematic.
Download Brochure
-
PICC (Peripherally Inserted Central Catheter)
A Peripherally Inserted Central Catheter (PICC) is a long, flexible tube that is usually placed in on the large veins in the arm.
Download Brochure
-
Ports
A port, also known as an Infusaport, in an implemented central venous access device.
Download Brochure
School life
-
Infection Control in Schools
Good infection control policies in schools can significantly lower infection rates.
Download Brochure
-
Starting school with CF
Here are some tips to consider when your child with cystic fibrosis is getting ready to start school.
Download Brochure
-
Exercise and sport in school
Exercise has many benefits and is an important part of the daily treatment routine for children with CF.
Download Brochure
-
CFSmart
CFSmart has been developed by Cystic Fibrosis Western Australia (CFWA) and Cystic Fibrosis Community Care (CFCC)
Visit CFSmart
-
A Guide to CF for Health Professionals
Cystic Fibrosis (CF) is the most common autosomal recessive condition in Australia
Read More Here
Physiotherapy
-
Airway Clearance Techniques
Airway Clearance Techniques are an essential part of management for people with CF.
Download Brochure
-
Airway Clearance Techniques: Autogenic Drainage
Autogenic Drainage is a controlled breathing technique that involved breathing at difference lung volumes to move mucas from the small airways to the large airways.
Download Brochure
-
Airway Clearance Techniques: Huff and Cough
Huff changes the airflow in the airways to help ove mucas towards the mouth so it can be cleared more easily with a cough.
Download Brochure
-
Airway Clearance Techniques: MPD (Modified Postural Drainage) and Percussion
MPD involves placing the child in different positions to help move mucas from different parts of the lungs.
Download Brochure
-
Airway Clearance Techniques: Positive Expiratory Pressure (PEP)
Positive Expiratory Pressure (PEP) is a resistance breathing technique.
Download Brochure
-
Nebulisers
A nebuliser is a device that changes liquid medication into an aerosol or mist so that it can be inhaled.
Download Brochure
CFFit: Exercise and Cystic Fibrosis Program
-
A Guide for People Living with CF
This booklet is designed to assist people with cystic fibrosis (CF) to exercise safely at home or within their community.
Download Brochure
-
A Guide for Personal Trainers
This booklet is designed to provide information about cystic fibrosis (CF) and how it may affect an individual in an exercise or sporting environment.
Download Brochure
-
My Exercise Record
Keep track of your goals and achievements with this easy to use exercise record.
Download Brochure
Nutrition
-
Healthy Fats
Fats are an essential part of our diet and are important for good health.
Find Out More
-
Nutrition for Babies
Babies with CF will have different dietary needs.
Find Out More
-
Nutrition for Children
Diet is particularly important in the management of cystic fibrosis.
Find Out More
-
Nutrition for Adults
A good CF diet can help you recover quickly from infections and give you more energy.
Find Out More
-
A guide for Infants
This booklet has been developed to provide you with practical, general and factual information about the nutritional needs of children with cystic fibrosis (CF) from birth to 2 years of age.
Download Brochure
-
A guide for Children
This booklet has been developed to provide you with practical, general and factual information about the nutritional needs of children with cystic fibrosis (CF) from ages 3 to 12 years of age.
Download Brochure
-
A guide for Young People
Did you know that food is like medicine and what you eat can influence how you feel physically? A healthy body weight can improve your lung function, help you recover quicker...
Download Brochure
-
A guide for Adults
Nutrition is a very important part of managing CF and can play a big role in how well you feel.
Find Out More
Hospital
-
First Hospital Admission
Although it may seem overwhelming, hospital admissions are essential to your child's health.
Download Brochure
-
Transition to Adult Hospital
Transition is described as ‘the purposeful planned movement of adolescents and young adults...
Download Brochure
-
Procedural Anxiety
Between 40 and 60% of children report anxiety before a medical treatment.
Download Brochure
Germs
-
Common Infections
People with CF are at greater risk of getting lung infections.
Download Brochure
-
Pseudomonas
Pseudomonas aeruginosa (Pa) is one of a number of bacteria that can infect people with Cystic Fibrosis (CF).
Download Brochure
Comorbidities (Issues that may arise alongside CF)
-
Continence
Urinary Incontinence is now recognised as an issue facing females of all ages with CF.
Download Brochure
-
Bone Health
Thinning of the bones can occur at an earlier age for people with CF.
Download Brochure
-
Cystic Fibrosis Related Diabetes
Cystic Fibrosis Related Diabetes occurs in about 20% of adolescents.
Download Brochure
Lung Transplant
-
Lung Transplant
Lung transplant is a well-established surgical procedure for some individuals with CF.
Download Brochure
Carers
-
Carers
Carers are everyday people who provide unpaid care and support to family members and friends.
Download Brochure
-
Siblings
Siblings of children with a chronic illness can face a number of challenges.
Download Brochure
Sexual Health and Fertility
-
Female Reproductive Information
Women with CF may have irregular periods which may lead to problems with fertility.
Download Brochure
-
Male Reproductive Information
As people with CF live longer and healthier lives, many more are becoming parents.
Download Brochure
Travel
-
Travelling with Children with CF
Travel is very rewarding and filled with the unexpected. Research your destination well – visas, vaccinations, transport, health alerts. Make copies of all travel and health documents. Purchase a changeable ticket so you can reschedule if unwell.
Download Brochure
-
Travelling Tips for Adults with CF
Travel is very rewarding and filled with the unexpected. Research your destination well – visas, vaccinations, transport, health alerts. Make copies of all travel and health documents. Purchase a changeable ticket so you can reschedule if unwell.
Download Brochure
Standards of Care
Cystic Fibrosis Australia released of the first Standards of Cystic Fibrosis Care Guidelines to be published in Australia in 2008. The Steering Committee worked together to complete the document and deliver to the Cystic Fibrosis community guidelines relevant to our unique needs in Australia. The specific areas covered are; Facilities and Staffing, Services, Newly Diagnosed Children, Newly Diagnosed Adolescents and Adults, Outpatient Care, Inpatient Care, Home Therapy, Transition Care, Outreach Services and Care, Transplantation and End of Life Care and the Role of the CF Organisations.
Download the Standards of Care (PDF)
Nutrition Guidelines for Cystic Fibrosis
The Nutrition Guidelines for Cystic Fibrosis in Australia and New Zealand were developed and written by dietitians experienced in the field of this disease.
Download the Guidelines (PDF)
View the video>
Infection Control
Reducing the risk of infections in everyday life: Information for people with cystic fibrosis and their carer's in Australia. This document has undergone peer review by the Thoracic Society of Australia and New Zealand.
Click HERE to read the document >
Tips to reduce Pseudomonas aeruginosa exposure, while being safe + having fun!
Click HERE to read the document >
Author's Statement:
The infographic “Tips to reduce Pseudomonas aeruginosa exposure, while being safe + having fun!” was produced in partnership by Honor Rose and Lizzie Deller. The creators are inspired to bring scientific research articles to the broader cystic fibrosis community and general public in engaging and easy-to-read formats. Thanks is also given to Dr. Ian Balfour-Lynn, the author of “Environmental risks of Pseudomonas aeruginosa — What to advise patients and parents”, Journal of Cystic Fibrosis. 2021 Jan;20(1):17-24, who kindly reviewed the adaption of his article into this infographic. The work is supported by Luggage not Baggage, a family-run fundraising group. The logo for Luggage not Baggage reflects the adventurous spirit we hope to instill in our children, despite all they may have to carry with them on their journey.
Honor Rose - mother of a child with CF
Gastrointestinal Cancers in Cystic Fibrosis
Please read the artilce HERE for further information.
COVID-19 Information
Please read ther article HERE for further information.