WA Links
The following are some organisations in Western Australia that may be of interest. Some have working relationships with Cystic Fibrosis WA.
Hospitals
Princess Margaret Hospital for Children (PMH) - CF Clinic for Children
Roberts Road, Subiaco WA 6008
P: (08) 9340 8222
W: http://www.pmh.health.wa.gov.au/
Sir Charles Gairdner Hospital (SCGH) - CF Clinic for Adults
Hospital Avenue, Nedlands WA 6009
P: (08) 9346 3333
Royal Perth Hospital - Heart Lung Transplant Unit
Wellington Street, Perth WA 6000
P: (08) 9224 2244
Other
Genetic Support Council WA (Inc)
Lvl 1, 37 Hampden Road, Nedlands WA 6009
P: (08) 9389 6722
W: www.geneticsupportcouncil.org.au
Kalparrin Centre
Princess Margaret Hospital for Children
Roberts Road, Subiaco WA 6005
P: (08) 9340 8094
Freecall: 1800 066 413
"a drop-in Centre for families of children with special needs...where families can get information and support related to their child's condition..."
Siblings in Western Australia
P: 1800 066 413
W: www.kalparrin.org.au/siblings.html
"Interagency sibling network working together to support silbings in families who have a child with special needs."
Carers WA
255 Walcott Street, North Perth WA 6006
P: (08) 9444 5922
Freecall: 1800 242 636
"to work in active partnership with Carers, persons with care and support needs, health professionals, service providers, government and the wider community to achieve an improved quality of life for Carers."
Make-A-Wish® Australia
Freecall: 1800 032 260
Make-A-Wish grants the cherished Wishes of children with a life-threatening medical condition. With every Wish a world of magic is created, bringing joy and laughter into their lives.
Children and teenagers aged from three up to 18 with a life-threatening medical condition are able to apply for a Wish. It is a fun time in which the whole family can take part. Children under the age of three may apply for a Wish Hamper; a selection of wonderful age appropriate toys.
In 2009 over 40 children with Cystic Fibrosis had their cherished Wish granted. The amazing Wishes ranged from having a green laptop to visiting the Gold Coast Theme Parks to meeting AC/DC in Barcelona.
Starlight Foundation
44 Wanneroo Road, YOKINE WA 6060
P: 08 9420 5999
W: http://www.starlight.org.au/OurPrograms/Pages/default.aspx
Starlight Escapes: Starlight Escapes offer families a break from the stress of a child’s illness. By providing simple, unexpected entertainment such as a night at the movies or a picnic in the park, the Starlight Escapes program brings families together and gives them a much needed rest from the hospital and treatment rooms.
Starlight Express Vans: The Starlight Express Van program ensures that children living in regional and remote areas have the opportunity to experience the magic of Captain Starlight throughout the year as the van travels across Australia.
Inside the vans are everything Captain Starlight needs to stage an entertaining show, including a Karaoke singing quest, a magic show, trivia or a face painting competition!
Starlight Wishgranting: A Starlight Wish is like a dream come true for a seriously ill child. Sharing a special, once-in-a-lifetime wish brings a family together, and is an experience that stays with them forever. Starlight aims to grant more wishes each year for children with serious and chronic illness.
Livewire: Starlight has developed Livewire, a secure online community connecting 10 to 18 year olds living with serious illness or disability. Livewire is a place where young people can make friends with their peers facing similar challenges. Livewire offers:
Ronald McDonald House
P: (02) 9875 6666
W: http://www.rmhc.org.au/aboutUs/default.asp
Ronald McDonald House Charities (RMHC) is an independent, non-profit organisation, that seeks to help seriously ill children and their families lead happier, healthier lives.
Ronald McDonald Learning Program: The Ronald McDonald Learning Program provides seriously ill children with a second chance in life by helping them catch up with their missed education and reach their true potential.
Ronald McDonald House: They provide a ‘home-away-from-home’ for families of children with serious illness, along with the support of experienced House Managers, volunteers and other families in a similar situation.
Family Retreat: Offers a place for families with a seriously ill child to enjoy a holiday together, take a break from the stresses of hospital and deal with their new life situation.
