Blow the House Down: The Story of My Double Lung Transplant
(Personal Stories)
Tolchin, C., New York, Writers Club Press, 2000
What is it like to receive a life-saving organ transplant? On April 13, 1997, I received new lungs. Blow the House Down details my story. It illustrates how Cystic Fibrosis affected my life and how I fought it. This book reflects the immense generosity of so many people, including my donor and her family; my family and friends; people who donate to Cystic Fibrosis research and drive major scientific breakthroughs; and doctors, nurses, and physical therapists who toil hard day in and day out to restore our health. Together, we each have the power to cure disease.
NOTE: This book is only for loan to our Western Australian members.
BACK
The NDR enables us to care for people who suffer from Cystic Fibrosis and to monitor disease progression and mortality on a National scale. This also involves genetic research, and allows us to study the impact of new treatment and technology. The Registry also assists multi-centre trials, nationally and internationally.
It is our mission to see that every person with Cystic Fibrosis no matter what age or sex is entitled to the very best care whether they live within walking distance from a Major CF Centre or in the most remote part of Australia. To do this, we have to know where these people live, to be able to provide accurate information in order to gain funding.
Carmel Moriarty RN
Research Nurse
Department of Respiratory Medicine
Royal Prince Alfred Hospital
