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Cystic Fibrosis Western Australia

Podcasts of Cystic Fibrosis Worldwide conferences

26/Jul/2011

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Hamburg, Germany - June 8, 2011

Valencia, Spain - June 18 - 19, 2010

 

From Cystic Fibrosis Worldwide

 

June 8, 2011
CONTINUOUS IMPROVING QUALITY OF CF-CARE:
HOW PATIENTS AND CF-CENTRES CAN WORK TOGETHER
Hamburg, Germany

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Welcome and introduction
Speakers: Dominique Bertrand and Martin Stern
Download/Play: English
Duration: 3 min 4 sec


How state-of-the art therapy can be made available to patients –
learning from a recent study on treatment-disparities in Europe.

Speaker: Anil Mehta
Download/Play: English
Duration: 17 min 46 sec

Questions and Answers
Download/Play: English
Duration: 14 min 15 sec


How to capitalize on the cooperation between care-centres and patient groups
Speaker: Karleen De Rijcke
Download/Play: English
Duration: 18 min 57 sec


Pro and Con session and debate: Transparency: Should CF-care centres "open their books" and publish treatment outcomes?

Pro Session
Speaker: Erik Wendel
Download/Play: English
Duration: 19 min 21 sec

Con Session
Speaker: Paul Wenzlaff
Download/Play: English
Duration: 28 min 24 sec

Pro and Con Debate
Download/Play: English
Duration: 26 min 40 sec


Reaching "difficult" patients: Experiences from a German intervention project.
Speakers: Jochen Mainz and Corinna Moos-Thiele
Download/Play: English
Duration: 22 min 5 sec


Benchmarking to foster continuous quality improvement: how to start and how to use?
Speaker: Michael Boyle
Download/Play: English
Duration: 25 min 47 sec

Questions and Answers
Download/Play: English
Duration: 7 min 55 sec

 

 







 

June 18-19, 2010
Cystic Fibrosis Lay Conference
Valencia, Spain

Organized by the Spanish Cystic Fibrosis Federation
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Opening conference
"Conclusions of the 33rd CF European Conference"
Speaker: Stuart Elborn, President of the European Society (ECFS)
Download/Play: English - Spanish || Slides: PowerPoint presentation
Duration: 17 min


Conference 1
Presented by Tomás Castillo-Arenal
"Recommended quality standards for Spanish cystic fibrosis units"
Speaker: Dr. Carlos Vázquez-Cordero
Download/Play: English - Spanish
Duration: 53 min


Workshop 1
Presented by Antonio T. Ríos-Tomás.
"Physical therapy in Cystic Fibrosis"
Speaker: Dr. Jean Chevalier
Download/Play: English - Spanish
Duration: 1 hr 45 min


Table 1. “Sexuality and fertility”
Moderator: Alejandro Dueñas-Celorio
Presentation of the manual “Lets talk about sex”.
Speaker: Dr. Carmen López-Sosa
Download/Play: English - Spanish
Duration: 19 min


Table 1. “Sexuality and fertility”
Female and male fertility in Cystic Fibrosis
Speaker: Dra. Irene Peregrín-Álvarez
Download/Play: English - Spanish
Duration: 23 min


Table 1. “Sexuality and fertility”
Personal Experiences
Speaker: Various
Download/Play: English - Spanish
Duration: 25 min


Table 2. “Participation and social rights”
The World of Associations
Speaker: Marta Cano
Download/Play: English - Spanish
Duration: 57 min


Table 2. “Participation and social rights”
Participating in community; study and work.
Speaker: Inmaculada Salas-Trejo
Download/Play: English - Spanish
Duration: 18 min


Table 2. “Participation and social rights”
Access to the rights of persons with disabilities
Speaker: Encarnación Blanco-Egido
Download/Play: English - Spanish
Duration: 44 min


Table 2. “Participation and social rights”
Parents Discussion
Speaker: Various
Download/Play: English - Spanish
Duration: 20 min


Workshop 2
Improving our habits
Speaker: María Garriga-García (Nutritionist)
Download/Play: English - Spanish
Duration: 20 min


Workshop 2
Improving our habits
Speaker: Miguel Mayans (Physical trainer)
Download/Play: English - Spanish
Duration: 26 min


Workshop 2
Improving our habits - Questions
Speaker: Various
Download/Play: English - Spanish
Duration: 6 min


Workshop 3
Life before and after transplantation
Speakers: Susana López (Psychologist) and Laura Esteban (Social Worker).
Download/Play: Spanish
Duration: 57 min


Table 3: Research in CF
“Pablo Motos” Research Grants
Speaker: Dr. Amparo Escribano-Montaner
Download/Play: English - Spanish
Duration: 24 min


Table 3: Research in CF
Communication about DHA
Speaker: Dr. Héctor Escobar-Castro
Download/Play: English - Spanish
Duration: 25 min


Conference 2
Why should hypertonic saline solution be used in Cystic Fibrosis?
Speaker: Dr. Adelaida Lamas
Download/Play: English - Spanish
Duration: 38 min


Presentación Red Iberoamericana de FQ
Speaker: Antonio Ríos
Download/Play: English - Spanish
Duration: 9 min


Closing ceremony
Speakers: Tomás Castillo-Arenal, Karleen De Rijcke, Mitch Messer
Download/Play: English - Spanish
Duration: 31 min