Cystic Fibrosis: A Family Affair
(CF General)
Chumbley J., London, Sheldon Press, 1999
ISBN 0-85969-771-1
Cystic Fibrosis affects a whole family and all the relationships within it. This book sets out to help anyone who has Cystic Fibrosis, and those close to theem. It explains genetics, the symptoms and medical information clearly and relevantly.
And as well as the practicalities, it offers reassurance and support as you cope with the challenges, from accepting the diagnosis and managing day to day life, to growing up and leaving home.
"... and excellent practical, clear and concise book for all parents of children with Cystic Fibrosis. Knowledge is power, and armed with the wealth of knowledge contained within this book, we can give our children the best chance of survival into adulthood, and a positive, hopeful outlook on life as they go though it." Anne Lovell
"Families newly coping with Cystic Fibrosis, as well as those who have lived with it for years, will take great comfort from this book. For those not affected directly, the book offers a compassionate and moving glimpse into the resilience and strength that so many of us find we have when faced with great adversity. Above all, it offers real hope and shows the way to live life to the full, even when coping with a life threatening illness." Rosie Barnes, Chief Executive Officer, Cystic Fibrosis Trust.
NOTE: This book is only for loan to our Western Australian members.
