Cystic Fibrosis: Everything You Need To Know
(CF General)
Kepron, W., New York, Firefly Books, 2004
ISBN 1-55297-740-4
Cystic fibrosis is a devastating gentetic disorder affecting tens of thousands of American children and adults. The disease affects the bodiy's mucus, which is vital to breathing, digestion and reproduction. It can also lead to joint pain, diabetes and kidney and liver problems.
People born with cystic fibrosis used to die in early childhood, today many live into their thirties or forties and are able to have careers and families.
In Cystic Fibrosis, Dr. Wayne Kepron explains this complex disease and the range of therapies available. Using case histories he describes ways of coping with the disorder. Topics include:
- what we know about genes and cystic fibrosis
- how the disease is recognised and diagnosed
- working with your treatment team
- managing symptoms and complications
- when is a lung tranplantation an option
- coping with end of life issues
Supplemented by diagrams, drug information
NOTE: This book is only for loan to our Western Australian members.
