"65 Roses" is what some children with cystic fibrosis (CF) call their condition because the words are much easier for them to pronounce.
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in America in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organisation seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.
*sourced from the Cystic Fibrosis Foundation
After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless.
He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children (and adults) of all ages to describe this condition and has been adopted by many CF organisations all over the world as their brand.
Cystic Fibrosis Victoria, along with all Australian CF organisations proudly bear the rose logo in recognition of this inspirational story.
The "65 Roses" story has captured the hearts and emotions of all who have heard it and is a registered trademark of Cystic Fibrosis Victoria.