NEWS

Bendigo - Great Strides 2016

 October 2016

 

WINTV News Bendigo in conversation with Kristy Hunt

Kristy Hunt, mother of two beautiful young children with CF and President of the Bendigo CF Support Group, talks to Allyson Fonseca from WINTV News at Great Strides 2016 in Bendigo

Click HERE for the story

 
Bendigo News Story

Support for cystic fibrosis community | Photos

Runners and walkers turned out to Lake Weeroona in their hundreds to support families in Bendigo affected by cystic fibrosis on Sunday.

Click HERE for the story from Bendigo Advertiser

 

Bendigo News Story 2

Great Strides fun run and walk for cystic fibrosis support in Bendigo

HUNDREDS are expected to turn out at Lake Weeroona this weekend for a fundraiser in support of people with cystic fibrosis.

Click HERE for the article from Bendigo Advertiser

Getting Ready to Stride for CF - Great Strides 2016

October 2016

Zoe Emerson Maribyrnong Leader

Steps to help Zoe

Denise and Luke Emerson hope their daughter will never what life is like with cystic fibrosis. The Footscray parents are determined to help fund a cure before then...

Click HERE for the article from Maribyrnong Leader

September 2016

Corowa Free Press

 

 

Great Strides for a great cause

In an extraordinary show of sibling support, Teagan, 25, is set to take part in the 2016 Great Strides fundraiser to help her brother Blake, 14, and others with cystic fibrosis breathe a little easier..

Click HERE for the article from Corowa Free Press

 

GS 2016 Melbourne Olivia Brown

 

Spirit's willing, but lungs are weak

OLIVIA Brown, like most twenty-somethings, likes to stay active and enjoy the outdoors, but her body doesn’t always keep up with her spirit.

Click HERE for the article from Star News Cranbourne

July 2016

Christie Checkley 

 

Breathe big for Macie

A NAGGING feeling told Creswick mum Christie Checkley all was not quite right with her beautiful newborn girl Macie. Little Macie was always sleeping except to feed, not putting on weight and had a nasty cough she could not shake.

Click HERE for the article from The Courier

  

65 Roses Month - May 2016

 June 2016

Kirsty Adamo

   

Kristy and Dean Addamo­ want to spread the word about cystic fibrosis

BRINGING a little brother into the world for four-year-old Ethan was a dream come true for Kristy and Dean Addamo­. But life has been nothing short of a rollercoaster for the Craigieburn family since welcoming their now seven-month-old son Caleb...

Click HERE for the North-west Leader article

May 2016

Kristy Hunt Bendigo

 

Living with the 'invisible' illness of cystic fibrosis

Kristy Hunt’s kids are the picture of health, but behind their big smiles and boundless energy lies a life-threatening illness. Lincoln Cain, 7, was diagnosed with the genetic disorder cystic fibrosis at six-weeks-old, while his sister Skyrah, nearly 3, was diagnosed before birth...

Click HERE for the Bendigo Advertiser article

 

 

Congratulations

January 2016

 

   


Jennifer Loughman OAM

Warmest congratulations to Jennifer Loughman – a very well deserved recipient of the Order of Australia. Jennifer’s many years of service to those individuals with CF and their families has been recognised on the Australia Day Honours List.. 

 

Getting Ready to Stride for CF - Great Strides 2015

November 2015

Herald Sun 2 November - Great Strides for CF 2015

 

   


Great Strides give hope to Baby Ben

The McLean family from Bacchus Marsh knew very little about CF at the beginning of this year. However, like so many families when they first receive a CF diagnosis, they have been on a steep learning curve over the past few months. 

Click HERE for Herald Sun report

November 2015

Hume Leader - 3Nov15 - Eli Farah - Front Page

 

   


Stepping up to stride for CF

ELI Farah is a lot tougher than most kids his age, even when his lungs aren’t co-operating.  Eli was diagnosed with cystic fibrosis at four weeks old, a shock that took parents Farah and Joanne a long time to come to grips with.
 

The family is now preparing to take part again in Great Strides, which includes a 4km walk and 8km run, is on Sunday at the Tan Track, Melbourne, to raise funds and awareness of the condition.

Click HERE for Hume Leader report.

 November 2015

Rockbank family ready for Great Strides

 

   


Bryce inspires army of walkers

Family and friends of Bryce Cowman will be among those taking great strides this weekend, as they help to raise money for cystic fibrosis.

Digger’s Army – named in honour of the toddler who was born on Anzac Day last year – will take to the Botanical Gardens for Cystic Fibrosis Victoria’s annual fundraiser on Sunday.

Click HERE for Melton Leader report

 

 

November 2015

Frankston Leader - Zahra & Izack

 

   


Frankston siblings step up to fight cystic fibrosis

Izack & Zahra Nessel, who both have CF, will be doing their bit to raise awareness, understanding and funds to support all Victorians living with CF at the 2015 Great Strides event on November 8

Click HERE for Frankston Leader report

November 2015

Jaxon

 

   


Action Jaxon climbing to great heights

The 4km run at Great Strides was just a warm up for this active 15-year-old who lives with CF.  Jaxon Urlich will be looking to improve on his amazing 2014 time of around 17 minutes when he does the Eureka Climb on 15 November.

Click HERE for Wyndham Leader report

 October 2015

Heidelberg Leader - Helen & Jackson Scott

 

   


Heidelberg step out to help fight cystic fibrosis

Three-year-old Jackson will be supported by family and friend at Great Strides Melbourne 2015 and 16-year-old Merryn won't let CF stop her from doing her best run around The Tan on 89 November 2015.

Click HERE for Heidelberg Leader report.

   

 October 2015

Kari's Crew

 

   


Nunawading family's walk of hope

Ever since Kari Prendergast was born seven years ago, her family have participated in Great Strides and this year is no exception. Mum Renea, brother Jay and sister Aisha are all set to stride for CF.

Click HERE for Nunawading Leader report.

   

October 2015

Kiara & Tahnee Ready to Stride

Enjoying GS Bendigo

 

Bendigo Takes Great Strides for Cystic Fibrosis

The Richardson are once again supporting Great Strides Bendigo. The two sisters both have cystic fibrosis but won't let it stop them enjoying the walk and family festival at Lake Weeroona

Click HERE for Bendigo Advertiser report

Around 450 locals took part in the walk / run at Lake Weerona on Sunday 25 October and hoped to raise over $30,000 for people living with cystic fibrosis

Click HERE for Bendigo Advertiser report

 

   

September 2015

Michael Kelso

 

Research Grant to Tackle Chronic Biofilm Infections

An Australian Cystic Fibrosis Research Trust (ACFRT) grant worth over half a million dollars is supporting the development of ‘Multi-­â€action antibiotics to treat chronic biofilm infections’.

Biofilms, large poulations of bacterial cells encapsultated with gum-like materials, often build up in the lungs of people with CF. Such bacterial clusters are protected against the action of antibiotics and against the action of cells in the patient’s immune system. 

Dr Michael Kelso and his team from the University of Wollongong are developing potential ways to break up these biofilms using nitric oxide, so that the bacterial are more sensitive to antibiotics and the body's immune system. 

Click HERE for more information.

   

August 2015

 

CF CAN - Cystic Fibrosis Advocacy Network

CFA establishes a cogent, intelligent and evidence informed group of consumer advocates who are able to present a representative view for the cystic fibrosis community and strive for systematic and policy changes on their behalf.       

   

June 2015

 

Kalydeco Now in 56 Tablet Blister Pack


 

 ARCHIVE 2014

   

1 September 2014

 

New CFV CEO Appointment   - Welcome Karin Knoester

6 August 2014

 

Hawthorn & Matt Suckling Bounce into Action for Katie

24 July 2014

 

Former CFV CEO Helen McNeill Loses Her Battle with Cancer