Cystic Fibrosis Victoria (CFV) offers a range of programs and services to support Victorians with cystic fibrosis (CF) and their families.
Programs and services available to members include:
If you have any questions about these programs and services, please contact us.
Contact us via the information, support and referral for more information about CF.
We advocate for the CF community at a local, state and national level and liaises with other organisations to lobby for improvements for those living with CF. CFV also works one-on-one with individuals providing support for self-advocacy as well as advocating on behalf of the individual.
We provide a range of education support services to support students, families and teachers to help students stay engaged with education while they are away from school. These include:
We are dedicated to raising awareness about CF and the availability of CF carrier screening Australia-wide. We also provide CF carrier screening grants for siblings and partners of individuals with CF.
Our speakers program provides speakers who can share their own knowledge and experience of CF with community groups, schools, sporting clubs, tertiary institutions and businesses.
Peer support links people with CF and their family with other community members so they can speak to someone who understands CF.
Our hospital visits provide us with a chance to drop by for a chat and drop off a Brody and Ellie’s Helping Hand boredom buster bag.
Our remembrance ceremony is held each year to remember the lives of people lost to CF.
We provide financial assistance to help with some of the cost of services and equipment that are needed by people with CF to maintain their health and wellbeing. These include:
We provide accommodation support for hospital stays in Melbourne for regional families.
We will be offering a limited number of grants for members to help with the cost of attending the 2017 Australasian CF conference that is being held in Melbourne from 5-8 August.
To submit your expression of interest in receivng a conference grant email email@example.com with:
Expressions of interest close 30 April 2017.
After the 30 April 2017, we will contact eligible applicants with more details.
CF carrier screening grants provide financial support toward the cost of CF carrier screening to siblings and partners of individuals with CF.
CF-related emergency financial assistance is available for urgent CF-related needs at times of crisis, during lengthy hospital admissions or following sudden changes of health.