CYSTIC FIBROSIS CARRIER SCREENING

INFORMATION RESOURCES KIT

Cystic Fibrosis Victoria (CFV) has developed the Information Resource Kit to provide the Victorian community and health professionals with access to reliable information on cystic fibrosis (CF) and CF carrier screening. 

When an inherited condition is diagnosed in a family, people often have questions about how and when to talk about it with other members of their family. Discussing CF with family members is improtant however can be a difficult converstaion to start. 

To assist, CFV have a number of resources to assist you to have these conversations, including fact sheets, brochures and videos. For more information visit the carrier screening main page.

Knowing Your Options
Carrier Screening FAQs
Carrier Screening Contacts
Discussions with Children
Discussions with Adults  

Do you have still have more questions than answers? Check out the Carrier Screening FAQs

The development of this Resource Kit was informed by consultation with the Murdoch Children’s Research Institute, the Victorian Clinical Genetics Service, and the Department of Respiratory Medicine, Royal Children’s Hospital

The CF Carrier Screening Community Education Campaign is supported by Balwyn Rotary Club.