Donate to CFV this Christmas and help us continue supporting our CF community

Make this Christmas count by giving a helping hand to those who need it most...      

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Christmas is just around the corner and it’s a time to be thinking of others, at CFV we’re reaching out to support families in the cystic fibrosis community.

Caron and Matt are preparing for their third Christmas with toddler Jude. Six long years of IVF including 11 unsuccessful attempts saw their dream slowly fading, until finally they were able to conceive. The joy and excitement of realising their dream was short lived.  After years of waiting to become parents, finding out your newborn has a life-limiting condition hits very hard. 

Jude only a few hours old, unaware of his dramatic journey ahead.      

  

Their emotions were on overdrive.

“We were devastated to learn of the diagnosis and it’s absolutely heartbreaking to think of an uncertain future for our son.”

What should have been the happiest time of their lives turned into a nightmare. At five weeks they were devastated to receive a call with the news that Jude’s newborn screening test indicated he had cystic fibrosis and needed to undergo a sweat test. The sweat test confirmed he had CF. Jude was admitted to hospital for three days, while Caron and Matt learnt about CF and how to care for Jude.

Suddenly, they had entered an unknown world full of anxiety.

That blissful new parent feeling left that day and was replaced by a constant fear and worry. We were thrust into the role of learning to care for Jude’s condition with things such as physio, nebulisers and medication”

Care for Jude is constant every day, there is no rest day!   

  

  

They were told Jude would require an extensive treatment regime every day for the rest of his life and that his condition will be life-limiting.

For Caron the diagnosis changed everything … “we can’t ever forget Jude has CF as our whole day revolves around it. Simple things like going to the beach need to be timed around routine care”

In Jude’s first year he was frequently on antibiotics due to recurrent infections. People with CF must avoid people who are unwell, a simple cold or sore throat could lead to serious illness making playdates, mothers’ groups and birthday parties difficult. This can be very isolating, especially for new parents. Here at CFV we help reduce this isolation through our peer education program as well as our community dinners which work to foster those vital support networks for parents and families that make managing CF a little bit easier. Your support will allow us to continue this critical work.

Financially CF has had a huge impact on Caron and Matt too, not only the expense of all the medication but the time needed to care for Jude. The couple have altered their work schedules to ensure that one of them can always be with Jude. This additional pressure has taken an emotional toll on them as individuals and as a couple.

Your generous donations allow us to continue to provide programs and support including our Fitness Participation Program, equipment loans as well as a range of grants and subsidies which help make life that little bit easier. Our education programs and resources like CFSmart are invaluable.

Despite the challenges ahead, Caron and Matt remain optimistic and believe that a cure for CF will be found. They want Jude to have the best possible chance of recovery when that day comes.

This Christmas, please help us to support families like Caron, Matt and Jude as they meet the challenges of day-to-day life with CF. 

It takes a whole community to manage CF and your help will reduce the huge financial and emotional impact. Your tax deductible donation will help us make a practical difference in the lives of many families.

Thank you for your support. You can help change Jude’s future and many others just like him.

   Caron & Matt's helping hands are always close by to support Jude with his daily needs

Donate now!