About Us

At Cystic Fibrosis Victoria our mission is to promote research, increase awareness of cystic fibrosis and provide education, support and advocacy to Victoria's cystic fibrosis community.

Cystic Fibrosis Victoria (CFV) was founded in 1974 by a group of parents of children with cystic fibrosis and became an Incorporated Association in 1984. Today, CFV is recognised as a public benevolent institution and is governed by a board of directors composed of representatives of people from the cystic fibrosis community and others with particular expertise in advancing the mission of CFV.

We provide advocacy, support and information services to people living with cystic fibrosis and their families. We also conduct awareness programs for the general public and fundraise to support service provision to families and adults living with cystic fibrosis and to promote cystic fibrosis research. As a not-for-profit charitable organisation CFV relies heavily upon the generosity of the Victorian public as well as private philanthropic sources. Approximately 20% of CFV's income is provided by the Victorian Government's Department of Human Services.

Key Result Areas

  • Programs and Servicesprovision of support programs and services that help to enhance the quality of life and meet the needs of over 900 members.  
  • Researchpromotion and facilitation of research into improved treatments and therapies for people with cystic fibrosis, and fundraising to support the Australian Cystic Fibrosis Research Trust.
  • National Unity and Collaboration participation in cooperative initiatives between the cystic fibrosis organisations across Australia.
  • Public Awareness and Communicationsmaintaining and improving relations and communication with members, the wider cystic fibrosis community, and other key stakeholders.
  • Information, Education and Advocacydelivery of information and education services to key stakeholders, and representing individuals and groups on issues that require government or institutional action.
  • Fundraising a committment to generating a regular stream of income to meet program delivery objectives, support research initiatives and remain financially viable in the future.
  • Governance and Transparencyprovision of a balanced, transparent and proactive governance and delivery of positive program outcomes through a highly productive workforce.

To view and download any of our Annual Reports please click here