Welcome to the website of Cystic Fibrosis Victoria

Working towards 'Lives unaffected by cystic fibrosis'


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Cystic Fibrosis Conference 2017

The 12th Australasian Cystic Fibrosis Conference (ACFC) will be held in Melbourne from August 5th to the 8th, 2017. The conference is Australasia's largest event dedicated to cystic fibrosis (CF) and will bring together around 200 lay people and over 350 medical, allied health and nursing delegates plus CF researchers from across the region and around the world.

You can now learn more and register your interest here, to receive updates as they become available.

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Orkambi Update - August 24, 2016

The agenda for the November 2016 PBAC meeting is now available and Kalydeco (2-5 years) and Orkambi (12+) are both listed.

Your comments and support are needed as a patient, carer, member of the public, health professional or member of a consumer interest group.

The Consumer Comments Submission form and further information can be found on the PBS Website.

CFA will be distributing materials to support the reimbursement of both drugs shortly.

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65 Roses Magazine - Winter Edition

With highlights from a successful 65 Roses Day in May 2016 and stories from our members and partners, 65 Roses Magazine is back! Take a look at the winter edition of 65 Roses Magazine

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Carrier Screening: Knowing Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...

WATCH NOW: Follow this link to watch the videos and learn more

Banner quote about carrier screening

Read more stories from members of the community...

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CFV Noticeboard - August Edition

Our August e-newsletter is out now! Read about the latest news and events including snapshot of support services, calendar of events this month and more...

Click here to read CFV Noticeboard August Edition

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