Welcome to the website of Cystic Fibrosis Victoria

Working towards 'Lives unaffected by cystic fibrosis'

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MERGER UPDATE

The Notice of Meetings and detailed information packs have now been sent to the Members of both CFV and CFNSW, explaining the details of the merger.

The documents detail that should the merger go ahead, CFVic would change from an association to a company limited by guarantee and have new name, Cystic Fibrosis Community Care. CFNSW would become a wholly owned subsidiary of CF Community Care.

The constitution of CF Community Care includes a Preamble which highlights the organisation’s commitment to engaging with the CF community and objects which are consistent with the current purposes of CFNSW and CFVic.
For more information and download links for the documents, please visit CFBuzz.

Please email karin@cfv.org.au if you have any questions.

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Do you attend the CF Clinic or the Transplant Clinic at the Alfred?

We understand that the administrative functions and outpatient service, currently on 5 West will be moved to two separate and different locations off the 5th floor. The Alfred are asking for feedback in relation to these changes. Please ensure your voice is heard.

There are feedback forms through the link below. Or, a separate email will also ensure your opinions are taken into account…. Patientfeedback5floor@alfred.org.au

In order for CFV to advocate effectively on your behalf, we would appreciate a copy of your feedback to the Alfred. Please CC your correspondence to ceo@cfv.org.au. 

Download the Feedback Form here

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Carrier Screening: Knowing Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...

WATCH NOW: Follow this link to watch the videos and learn more

Banner quote about carrier screening

Read more stories from members of the community...

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Cystic Fibrosis Conference 2017

The 12th Australasian Cystic Fibrosis Conference (ACFC) will be held in Melbourne from August 5th to the 8th, 2017. The conference is Australasia's largest event dedicated to cystic fibrosis (CF) and will bring together around 200 lay people and over 350 medical, allied health and nursing delegates plus CF researchers from across the region and around the world.

You can now learn more and register your interest here, to receive updates as they become available.

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