Welcome to the website of Cystic Fibrosis Victoria
Working towards 'Lives unaffected by cystic fibrosis'
The Ball is Back!
Cystic Fibrosis Victoria would like to invite you to our upcoming charity gala ball, A Night for CF. This year, we aim to raise $50,000 to fund an exciting new research program, to be announced on the night. Hosted by FOX FM’s Keegan Bakker, the evening will feature live performances by Laura Loe, Bakers Boys Band and the Australian Girls Choir. We hope you will join us to enjoy the finest wine courtesy of Ros Ritchie Wines and exceptional food from the world-class caterers at The International.
Find out more and book your table today. It is going to be a fantastic night!
CFA CEO Update on the Orkambi Campaign, June 6 2016
Now is the Winter of our Discontent… but is our dissatisfaction about to end?
The cystic fibrosis community remains outside the ‘stakeholder consultations’ about the funding of costly new generation drugs. The consumer voice should be acknowledged and Cystic Fibrosis Australia needs the CF community to mobilise.
Carrier Screening: Knowing Your Options
An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...
CFA CEO Update on the Orkambi Campaign, May 23 2016
In April, disappointing news that the PBAC rejected Vertex’s proposal for the reimbursement of the cost of Orkambi rocked the CF community in Australia.
And now, it's time to contact the politicians.
CFA has developed a Politicians Support campaign to inform local members of the issues that affect the CF community. CEO Nettie Burke's Communiqué has everything you need to lend your voice to the campaign, including a few simple questions to ask your local leaders, as well as, their contact details.
CFV Noticeboard - June Edition
Our June e-newsletter is out now! Read about the latest news and events including Orkambi update, 65 Roses Month, support activities and more!
65 Roses Magazine - Autumn Edition
Take a look at the autumn edition of 65 Roses Magazine