Welcome to the website of Cystic Fibrosis Victoria

Working towards 'Lives unaffected by cystic fibrosis'

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Happy 65 Roses Month

The 65 Roses story dates back to 1965 when a young boy pronounced cystic fibrosis (CF) as 65 Roses. Since then, 65 Roses has been synonymous with our cause and the rose has been adopted as the national symbol for CF.

Our national fundraising campaign, 65 Roses, raises awareness and essential funds to extend and improve the quality of life for people with cystic fibrosis.

In 2017 we are aiming to raise $40,000 to enhance the programs and services that support people living with cystic fibrosis in Victoria and their families. With your help we can make a real difference.

How can you help this May?

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MERGER UPDATE - CFV & CFNSW TO MERGE

6 April 2017: The Members of Cystic Fibrosis NSW and Cystic Fibrosis Victoria have voted in overwhelming favour of amalgamating. Our new organisation will be known as Cystic Fibrosis Community Care – or CFCC.

CFCC will benefit the community in many ways through the reduction of duplication and financial overheads, whilst also increasing administrative efficiency and coordination. More money will be available for the provision of services and research.

This vote is a key step in a long process. Full implementation will take many months, possibly a year. Rest assured, the NSW and VIC communities will continue to be consulted as we merge into CFCC and become a stronger organisation.

If you have any concerns or questions in relation to CFCC, please don't hesitate to email CFV CEO Karin Knoester or call (03) 9686 1811.

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Do you attend the CF Clinic or the Transplant Clinic at the Alfred?

We understand that the administrative functions and outpatient service, currently on 5 West will be moved to two separate and different locations off the 5th floor. The Alfred are asking for feedback in relation to these changes. Please ensure your voice is heard.

There are feedback forms through the link below. Or, a separate email will also ensure your opinions are taken into account…. Patientfeedback5floor@alfred.org.au

In order for CFV to advocate effectively on your behalf, we would appreciate a copy of your feedback to the Alfred. Please CC your correspondence to ceo@cfv.org.au. 

Download the Feedback Form here

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Carrier Screening: Knowing Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...

WATCH NOW: Follow this link to watch the videos and learn more

Banner quote about carrier screening

Read more stories from members of the community...

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Cystic Fibrosis Conference 2017

The 12th Australasian Cystic Fibrosis Conference (ACFC) will be held in Melbourne from August 5th to the 8th, 2017. The conference is Australasia's largest event dedicated to cystic fibrosis (CF) and will bring together around 200 lay people and over 350 medical, allied health and nursing delegates plus CF researchers from across the region and around the world.

You can now learn more and register your interest here, to receive updates as they become available.

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