Welcome to the website of Cystic Fibrosis Victoria

Working towards 'Lives unaffected by cystic fibrosis'


May is 65 Roses Month!

65 Roses month banner

Our national fundraising campaign, 65 Roses raises awareness and essential funds  to extend and improve the quality of life for people with cystic fibrosis.

Click here to find out how you can help.

CF Carrier Screening: Knowing Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...

WATCH NOW: Follow this link to watch the videos and learn more

Banner quote about carrier screening

Read more stories from members of the community...


CFA CEO Udate on the Orkambi Campaign, May 17 2016

The PBAC ruling rejecting the reimbursement of Orkambi and the lack of support and interest in healthcare in the Federal Government’s budget have caused a great deal of disappointment and dissatisfaction in the cystic fibrosis community. We need your help to figure out our next steps.

Click here to read CFA CEO's Communiqué on how you can help


CFA CEO Press Note on Orkambi, April 27 2016

Our health system is ailing and placing Australians at risk. Cystic Fibrosis Australia is calling on the community to find their voice and share their stories...

Read the full Communiqué from CFA CEO Nettie Burke

Find out how you can get involved

PBAC decision on Orkambi, 22 April 2016

Sadly, Orkambi, the latest new generation drug for cystic fibrosis (CF), has not been recommended for reimbursement by the Pharmaceutical Benefits Advisory Committee (PBAC) for Australians with CF…

Click here for the latest CFA Communiqué on the PBAC decision


CFV Noticeboard - May Edition

Our May e-newsletter is out now! Read about the latest news and events including Orkambi update, events planned for 65 Roses Month, support activities and more!

Click here to read CFV Noticeboard May Edition

2015 Annual Report 

To read a summary of the 2015 Annual Report, click here.


65 Roses Magazine - Autumn Edition

Take a look at the autumn edition of 65 Roses Magazine here