Welcome to the website of Cystic Fibrosis Victoria

Working towards 'Lives unaffected by cystic fibrosis'


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Support CFV this tax time

Tax Appeal 2016 Banner

Meet the Mackenzies. Courtney and Sean are like any other siblings, but their daily routines involve a regimen of tablets, therapies and treatment...

This tax time, donate to CFV so that we can continue to offer a variety of programs and services to families like the MacKenzies, including financial assistance in times of crisis, support functions, accommodation assistance for families during hospital stays, TV hire during hospital admissions, transplant assistance and hire equipment.

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The Ball is Back!

Banner-A night for CF

After a long hiatus CFV are bringing back the ball, where we aim to raise $50,000 to fund an exciting new research program, to be announced on the night. Hosted by Fox FM’s very own Keegan Bakker, the evening features a live performance from Laura Loe, the finest wine courtesy of Ros Ritchie Wines, exceptional food and the opportunity to kick up your heels and dance the night away.

Book your spot and come join us. It is going to be a fantastic night!

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CFA CEO Update on the Orkambi Campaign, June 6 2016

Now is the Winter of our Discontent… but is our dissatisfaction about to end?

The cystic fibrosis community remains outside the ‘stakeholder consultations’ about the funding of costly new generation drugs. The consumer voice should be acknowledged and Cystic Fibrosis Australia needs the CF community to mobilise.

Click here for more information on how you can help.

Download the social media assets.

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Carrier Screening: Knowing Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...

WATCH NOW: Follow this link to watch the videos and learn more

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Read more stories from members of the community...

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CFA CEO Update on the Orkambi Campaign, May 23 2016

In April, disappointing news that the PBAC rejected Vertex’s proposal for the reimbursement of the cost of Orkambi rocked the CF community in Australia.

On the other hand, CFA and CFV have had great support from the community, our clinicians, CF CAN and the media in our campaign for Orkambi. Thank you!

And now, it's time to contact the politicians. 

CFA has developed a Politicians Support campaign to inform local members of the issues that affect the CF community. CEO Nettie Burke's Communiqué has everything you need to lend your voice to the campaign, including a few simple questions to ask your local leaders, as well as, their contact details.

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CFV Noticeboard - June Edition

Our June e-newsletter is out now! Read about the latest news and events including Orkambi update, 65 Roses Month, support activities and more!

Click here to read CFV Noticeboard June Edition

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65 Roses Magazine - Autumn Edition

Take a look at the autumn edition of 65 Roses Magazine