Welcome to the website of Cystic Fibrosis Victoria
Working towards 'Lives unaffected by cystic fibrosis'
MERGER UPDATE - CFV & CFNSW TO MERGE
6 April 2017: The Members of Cystic Fibrosis NSW and Cystic Fibrosis Victoria have voted in overwhelming favour of amalgamating. Our new organisation will be known as Cystic Fibrosis Community Care – or CFCC.
CFCC will benefit the community in many ways through the reduction of duplication and financial overheads, whilst also increasing administrative efficiency and coordination. More money will be available for the provision of services and research.
This vote is a key step in a long process. Full implementation will take many months, possibly a year. Rest assured, the NSW and VIC communities will continue to be consulted as we merge into CFCC and become a stronger organisation.
If you have any concerns or questions in relation to CFCC, please don't hesitate to email CFV CEO Karin Knoester or call (03) 9686 1811.
Do you attend the CF Clinic or the Transplant Clinic at the Alfred?
We understand that the administrative functions and outpatient service, currently on 5 West will be moved to two separate and different locations off the 5th floor. The Alfred are asking for feedback in relation to these changes. Please ensure your voice is heard.
There are feedback forms through the link below. Or, a separate email will also ensure your opinions are taken into account…. Patientfeedback5floor@alfred.org.au
In order for CFV to advocate effectively on your behalf, we would appreciate a copy of your feedback to the Alfred. Please CC your correspondence to email@example.com.
Download the Feedback Form here
Carrier Screening: Knowing Your Options
An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...
Cystic Fibrosis Conference 2017
The 12th Australasian Cystic Fibrosis Conference (ACFC) will be held in Melbourne from August 5th to the 8th, 2017. The conference is Australasia's largest event dedicated to cystic fibrosis (CF) and will bring together around 200 lay people and over 350 medical, allied health and nursing delegates plus CF researchers from across the region and around the world.
You can now learn more and register your interest here, to receive updates as they become available.