Welcome to the website of Cystic Fibrosis Victoria
Working towards 'Lives unaffected by cystic fibrosis'
May is 65 Roses Month!
Our national fundraising campaign, 65 Roses raises awareness and essential funds to extend and improve the quality of life for people with cystic fibrosis.
Click here to find out how you can help.
CF Carrier Screening: Knowing Your Options
An estimated 1 in 25 Australians carry the gene changes that can cause CF. Most of whom are unaware...
CFA CEO Udate on the Orkambi Campaign, May 17 2016
The PBAC ruling rejecting the reimbursement of Orkambi and the lack of support and interest in healthcare in the Federal Government’s budget have caused a great deal of disappointment and dissatisfaction in the cystic fibrosis community. We need your help to figure out our next steps.
CFA CEO Press Note on Orkambi, April 27 2016
Find out how you can get involved
PBAC decision on Orkambi, 22 April 2016
Sadly, Orkambi, the latest new generation drug for cystic fibrosis (CF), has not been recommended for reimbursement by the Pharmaceutical Benefits Advisory Committee (PBAC) for Australians with CF…
CFV Noticeboard - May Edition
Our May e-newsletter is out now! Read about the latest news and events including Orkambi update, events planned for 65 Roses Month, support activities and more!
Click here to read CFV Noticeboard May Edition
2015 Annual Report
To read a summary of the 2015 Annual Report, click here.
65 Roses Magazine - Autumn Edition
Take a look at the autumn edition of 65 Roses Magazine here