CYSTIC FIBROSIS COMMUNITY CARE (VIC)

Working towards
'Lives unaffected by cystic fibrosis'


 

Community Focus Magazine

Welcome to our final edition of CommUNITY Focus for 2017!

IN THIS EDITION

  • read about some of the amazing fundraising activities CFCC NSW and VIC have been involved in this year
  • join us as we we say a huge 'thank you' to all our wonderful volunteers, whose tireless support makes our events possibleCommunity Focus magazine December 2017
  • see what our support services team are delivering to our community in 2018
  • meet baby Norah and her family who are representing us this years Christmas Appeal
  • take a look back at 2017 in pictures
  • check out the list of fantastic events we have planned for 2018!

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What's On

WHAT'S ON ... 2018!

GET READY for an action packed year, with 2018 shaping up as a busy one for CFCC!

We're excited to be providing a wide selection for activities for our members to enjoy and, among other things, will bringing our support dinners to metro and regional locations throughout the year.

And to increase CF awareness in the community and raise much needed funds we have a year crammed with some fantastic fundraising events.

For a taster of what to expect in 2018 check out our Events Calendar and jot down some dates today.

More information about upcoming events will be available shortly ... watch this space!


ORKAMBI ANNOUNCEMENT - 18 AUG 2017

Rest assured we are as equally devastated by today’s PBAC announcement on Orkambi as you are.

Yet again, our cystic fibrosis (CF) community has been let down by the Australian health system. For the third time the Pharmaceutical Benefits Advisory Committee (PBAC) has rejected Vertex’s submission for reimbursement for the CF drug Orkambi.

People with CF in Ireland, the United States of America, France, Germany, Greece and Italy have access to Orkambi. There are 1,000+ Australians with cystic fibrosis waiting for Orkambi and every day they are denied access to this drug is another day of potential life limiting lung damage.

Read the Cystic Fibrosis Australia media release on the Orkambi announcement here.


WE ARE CFCC - JULY 2017

We are CFCC

After many months of work, Cystic Fibrosis Community Care (CFCC) has officially incorporated the old CFV and CFNSW.

As CFCC we care for half the total number of people living with CF in Australia.

The name of our new organisation reflects what we want to achieve ... 'care for our community', and we welcome the opportunity to do that better than we ever have before.


Carrier Screening: Know Your Options

An estimated 1 in 25 Australians carry the gene changes that can cause CF.

Most are unaware ...

WATCH NOW: Follow this link to watch the videos and learn more

Banner quote about carrier screening

Read more community member stories ...


 

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