The Standards of Cystic Fibrosis Care Guidelines

Click here to download PDF Standards of CF Care in Australia

Click here to download PDF CFA Standards of Care Executive Summary

Cystic Fibrosis Australia released of the first Standards of Cystic Fibrosis Care Guidelines to be published in Australia in 2008. The Steering Committee worked together to complete the document and deliver to the Cystic Fibrosis community guidelines relevant to our unique needs in Australia. The specific areas covered are; Facilities and Staffing, Services, Newly Diagnosed Children, Newly Diagnosed Adolescents and Adults, Outpatient Care, Inpatient Care, Home Therapy, Transition Care, Outreach Services and Care, Transplantation and End of Life Care and the Role of the CF Organisations.

A comprehensive guideline now exists for CF Centres and Services to aspire to. It is based on current evidence and best practice and outlines the ideal situation for the management and care of people in Australia with Cystic Fibrosis. Very special thanks must go to Scott Bell of The Prince Charles Hospital and Phil Robinson of Royal Childrens Hospital in Melbourne who Co-Chaired the first committee. Also to Dominic Fitzgerald who acted as editor for the guidelines. The Steering Committee were; Brenda Button, Peter Bye, Clare Collins, Conrad Guerra, Colleen Jackson, Lisa Martin, Kerry Mordaunt, Carmel Moriarty, Chris O’Connor, David Reid, Pamela Rowel, Gerard Ryan, Esta-Lee Tannenbaum, Claire Wainwright and Bruce Whitehead. The committee was formed from medical, allied health, CF organisations and adult Cystic Fibrosis representatives.

Special acknowledgment must also go to Peter Middleton, Maxine Braithwaite, Susan Sawyer and Craig Mellis for their contribution to the document. The project was funded by Cystic Fibrosis Australia.

The guidelines are; in 2012 under review. New guidelines are expected to be complete before the end of the year. There will be additional chapters and a review of all existing chapters.