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Cystic Fibrosis South Australia

Parents & Carers Supports

Being a parent and/or carer for a person with CF is a demanding role - ensuring treatment and medications are adhered to, advocating for your child's welfare and of course just enjoying time with them.

CFSA recognises the challenges and aims to support parents and/or cares with a range of supports, including information and resources about CF and latest happenings, network support (linking parents with other parents), an annual parent's retreat, fathers and mothers activities, grandparents information pack, regular parents dinners and coffee mornings, as well as many other activities.

parent dinner

Parents enjoying dinner and a chat!

Next Parent Dinner:  Tues 21st February 2012 at 7.15pm at venue TBA

RSVP rcraig@cfsa.org.au

Every Precious Breath by Tom Valenta

 Every Precious Breath

Tom Valenta has two grandsons with Cystic Fibrosis.  He tells their story and the inspirational stories of people and their families living with CF in "Every Precious Breath".  The book retails for $21.95 but you can purchase from CFSA for $15 (Tom is donating $7 per book to CFSA).  Please click here to purchase your copy online or contact CFSA on 8221 5595!