The Standards of Cystic Fibrosis Care Guidelines
Cystic Fibrosis Australia would like to announce the release of the first Standards of Cystic Fibrosis Care Guidelines to be published in Australia. For the past two years a dedicated Steering Committee has worked tirelessly to complete the document and deliver to the Cystic fibrosis community a real and inclusive Standard of Cystic Fibrosis Care Guidelines.
Specific Areas covered are; Facilities and Staffing, Services, Newly Diagnosed Children, Newly Diagnosed Adolescents and Adults, Outpatient Care, Inpatient Care, Home Therapy, Transition Care, Outreach Services and Care, Transplantation and End of Life Care and lastly the Role of the CF Organisations.
This document is a comprehensive guideline for CF Centres and Services to aspire to. It is based on current evidence and best practice and outlines the ideal situation for the management and care of people in Australia with Cystic Fibrosis.
Very special thanks must go to Scott Bell of The Prince Charles Hospital and Phil Robinson of Royal Childrens Hospital in Melbourne who Co-Chaired this committee. Also to Dominic Fitzgerald who acted as Editor for the Guidelines. Sincere thanks to the Steering Committee; Brenda Button, Peter Bye, Clare Collins, Conrad Guerra, Colleen Jackson, Lisa Martin, Kerry Mordaunt, Carmel Moriarty, Chris O’Connor, David Reid, Pamela Rowel, Gerard Ryan, Esta-Lee Tannenbaum, Claire Wainwright and Bruce Whitehead. This wonderful group of people came together from Medical, Allied Health, CF Organisation and Adult Cystic Fibrosis backgrounds. On behalf of the Cystic Fibrosis community I thank you all for your commitment and energy.
Special acknowledgment must also go to Peter Middleton, Maxine Braithwaite, Susan Sawyer and Craig Mellis for their input and expertise and to all the CF Health Care Professionals who contributed their feedback and suggestions.
This project was proudly funded by Cystic Fibrosis Australia, congratulations to all on a job well done.
Terry Stewart
Chief Executive Officer
Cystic Fibrosis Australia
The Standards of Cystic Fibrosis Care Guidelines (PDF)
