Latest News

MUSICAL RAFFLE: Alan and Jenny Tunks, of Ballina, with Ramada Hotel and Suites general manager Karen Whiteford (centre) and the Gibson guitars being raffled in support of cystic fibrosis research.

Strumming up support at Bluesfest to cure cystic fibrosis
The Daily Examiner 26th Mar 2014

"IN 18 YEARS, Ballina's Alan and Jenny Tunks have raised a whopping $312,000 with guitars." By Graham Broadhead Read more


Article 1

Cystic Fibrosis sufferer Paul McKean fears being caught in Queensland doctor 5th Apr 2014

"As Queensland's doctors battle it out with the Newman government over contracts and conditions, patients have been caught in the middle." By Cameron Atfield Read more

Article 2

PulmoXen Experimental Cystic Fibrosis Drug From Xenetic Biosciences’ Ends with Positive Results In International Phase 1 Clinical Trial
BioNews Texas 14th Apr 2014  

"Massachusetts-based biopharmaceutical company Xenetic Biosciences, Inc. recently reported that it is encouraged by the results of a Phase 1 clinical trial conducted in Russia by its partner, PJSC Pharmsynthez. The trial evaluated Xenetic’s PulmoXenTM, a modified form of recombinant human DNase I, for the treatment of cystic fibrosis." By Maureen Newman Read more

 Article 3

Cystic fibrosis sufferer gets married at 16 because she ‘may not have long to live’
Daily Mail & Metro News 29th Mar 2014

"Iona Lindley revealed for the first time how she wed husband Laurie Kesteven, 18, last year because the couple were aware she faced a reduced life expectancy because of her illness." Read more

Article 4

Cystic fibrosis sufferer reveals how she had started to plan her funeral after waiting 15 months for new lungs
Daily Record & Sunday Mail 10th Apr 2014 

"Lynette Armitage had no idea just how close to death she had been until she spoke to surgeons after her eight-and-a-half-hour op." By Craig McQueen Read more

 Article 6

Friends rally for pal by collecting fundsMacclesfield Express
Macclesfield Express 10th Apr 2014 

"A group of friends are raising money for the Cystic Fibrosis Trust in honour of their friend who has the illness." By Rhiannon McDowall-MACC Read more

Disclaimer: Articles published do not necessarily reflect the views of CFNSW.