About Us
We have a vision of people living lives unaffected by cystic fibrosis, a mission to improve the quality of life for people with CF and their carers, and a goal to support services, education and research to benefit people with CF.
Our work
- We provide a home visiting support service, which includes a range of counselling services as well as practical support and treatment in the home to lighten the load of families caring for a child or young person with CF. We have a Peer Support Program and a Country Outreach service.
- We provide a range of information services and seek to raise the level of public awareness of Cystic Fibrosis.
- We raise funds for research, which we direct to the Australian Cystic Fibrosis Research Trust.
- We advocate for the CF community by lobbying with all levels of government for improved services and benefits and we also provide advocacy support on an individual basis.
Our background
In 1967 a group of parents of children with CF and medical personnel involved with treating the condition founded the organisation as the Cystic Fibrosis Association of New South Wales.
Originally a parent self-help group the organisation has gradually employed a growing staff of professionals to provide a range of support services, an information and education service, and an advocacy service.
Cystic Fibrosis NSW is a registered not-for-profit charity (ABN 53 002 522 241) with Deductible Gift Recipient (DGR) and tax-exempt status
