A baby is born with cystic fibrosis every four days. Most won't turn forty.

At Cystic Fibrosis (CF) NSW we have a vision of people living lives unaffected by CF. A mission to improve the quality of life for people with CF and their carers, and a goal to provide support services, education and research that will help people with CF.  

Latest News


Kalydeco on verge of PBS approval

5th February 2017

Cystic Fibrosis Australia (CFA) has been reliably informed that Kalydeco will be made available on the PBS to children between the ages of 2 and 5 years who have a CF gating mutation.

Upcoming Events

CFNSW Fundraising Event

65k 4 65 Roses Walkathon

25th February 2017, Leichhardt Park

Join Sydney's longest one day walkathon and help support Cystic Fibrosis NSW and the Children's Hospital at Westmead. The family-friendly event will take place around Sydney's Iron Cove Bay at Leichhardt Park, and will feature a 7km, 21km, 35km 42km and 65km.

CFNSW Fundraising Event

Go Red for CF

August - December

Go Red for CF is an annual fundraising event held in organisations, communities and schools across NSW. For a gold coin donation encourage your community to wear red for a day.

CFNSW Fundraising Event

Crazy Hair Day

17th June 2016 (or your choice)

Ready to go crazy and raise awareness about cystic fibrosis? Crazy Hair Day is an annual fundraising event held in schools across Australia. For a gold coin donation encourage your students and teachers to wear their craziest hair at school.