Useful Links

Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis.  They fund more research than any other organisation in the United States.  They are a not-for-profit donor-supported organisation dedicated to attacking cystic fibrosis from every angle.  Their focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately find a cure.

Cystic Fibrosis Worldwide

Cystic Fibrosis Worldwide (CFW) is a non-profit organization located in Massachusetts, USA and Izmir, Turkey. CFW is dedicated to improving quality of life and life expectancy for people living with cystic fibrosis (CF), a genetic life-threatening disease. Since inception in 2002, CFW has used a variety of programs to aid the CF community in the US and throughout the world.

CF Carrier Screening Program

“ All couples intending to have children, or who are pregnant, should be made aware of the availability of cystic fibrosis carrier screening”

WikiCF

WikiCF is an open, free website for and by people living with CF, their families and friends.  It is created and managed by CF Europe.  All content is reviewed by professionals to ensure it is of the highest quality.  WikiCF is a place to connect and network.  You can exchange practical information with others, from the latest treatments to tips on living with CF.  You can also read about others’ experience or watch an inspiring video.

Livewire

Livewire is a safe and fun online community for 10-20 year olds living with a serious illness, chronic condition or disability (and their siblings!) Join up today for fun competitions, interesting articles, celebrity gossip and entertainment news and peer support.

 Siblings Australia

Siblings Australia is a unique national organisation committed to improving the support available for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues.

Carers Australia

Carers Australia is the national peal body representing Australia’s carers.  They take a leadership role and respond to carers’ needs and those of the people they care for.  They advocate on behalf of Australia’s carers to influence policies and services at a national level.  Carers Australia work collaboratively with partners and their member organisations, the Network of State and Territory Carers Associations, to deliver a range of essential national carer services.

 

International CF Organisations

 Cystic Fibrosis New Zealand

Established in 1968, The Cystic Fibrosis (CF) Association of New Zealand has been supporting the people with CF and their families by increasing awareness of the condition, education, advocacy, helping fund research, and providing social and financial support.

Cystic Fibrosis Canada

Cystic Fibrosis Italy

Cystic Fibrosis Netherlands

Cystic Fibrosis Education

Cystic Fibrosis Trust UK

Cystic Fibrosis Ireland