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Showing results for: CF Australia

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  • Home

    Every four days, a child is born with Cystic Fibrosis. There are over one million carriers in Australia alone and most are not even aware that they carry this life...

  • Home VIC

    Welcome to the website of Cystic Fibrosis Community Care - Victoria Working towards 'Lives unaffected by cystic fibrosis'   ORKAMBI ANNOUNCEMENT - 18 AUGUST 2017 Rest assured that we are...

  • Home TAS

    My Giving Circle Wouldn't it be great if CFT won a share of $5,000 just before Christmas?  It would cap off a somewhat challenging year for our Association. All you...

  • Home WA

    Cystic Fibrosis WA Our mission is to contribute to the social, physical and emotional wellbeing of those affected by cystic fibrosis and to assist in the promotion of research. Our...

  • Home CFA

    Latest news: NEW! Platform launched to Connect the CF Community! Cystic Fibrosis Australia is delighted to launch Consumer Connect, an online portal that gives everyone in the CF community easy...

  • Advocacy

    Advocacy We advocate on behalf of our members to gain better access to services, obtain information or resources. On a larger scale we have been involved in several national campaigns...

  • Kalydeco & Orkambi

    Orkambi  December 20, 2016 The PBAC again rejected Vertex’s Orkambi submission and it was not been recommended for reimbursement. A third major PBAC submission is on the cards for 2017....

  • Orkambi FDA Approval

    ORKAMBI - A NEW CFTR MODULATOR  Treating the cause of CF  Orkambi, the twice-a-day pill designed to treat people living with the most common mutation of cystic fibrosis (CF) -...

  • Orkambi Trial Results

    LATEST RESULTS OF TRAFFIC and TRANSPORT DRUG TRIALS Ivacaftor (Kalydeco) in combination with lumacaftor for people with two F508del. In May 2015 the results of the latest studies into Orkambi,...

  • Orkambi Press Note

    CFV Press Note Our Health System is ailing and leaving Australians at risk. April 2016: The recent decision by the PBAC defies belief and leaves the 1,000 Australians with the two...

  • Media

    On this page: In the media Media releases Spokespeople Media contacts In the media Cystic Fibrosis Australia advocate on behalf of the CF community and aim to raise awareness for...

  • Politicians

    Cystic Fibrosis Australia are passionate about advocating for the CF community but we need your help. You can add your voice, your signature, your power to the chorus of Australians...

  • CFNSW AGM 2016

    Annual General Meeting 2016 and Mini Convention Click here to RSVP Date: Sunday, 13 November 2016. Location: Club Rivers, 32 Littleton St, Riverwood. Time: 10am - 3pm. Agenda 10.00am-...