About CFA
CFA is a national body comprising member State CF Associations. The national office is located in North Ryde New South Wales.
The national organisation assists the member organisations to achieve common objectives by developing national education programs and collecting and distributing information about Cystic Fibrosis (CF) at national and international levels. This allows member organisations to efficiently and effectively direct their activities to the provision of high quality health and welfare services to children and young adults with CF and their families.
A major task of the national office is to secure the funds and professional expertise necessary to conduct research projects throughout Australia into CF, its cause and eventual cure. The research program is conducted through the Australian Cystic Fibrosis Research Trust (ACFRT), which operates within the CFA corporate structure.
CFA also administers and seeks funding for the National Cystic Fibrosis Data Registry. Established in 1996 the registry is a complete and thorough record of all people in Australia who have CF. To maintain privacy, each person with CF is coded. The registry is updated annually and has proved to be an invaluable aid to researchers seeking specific data for research projects and clinical trials. From 2006 all data collected will be via a web base system.
CFA organizers a National CF Conference every 2 years for Health Professionals and Lay People. This is held in Capital Cities - in 2007 it will be Sydney.
AIM
- To facilitate and promote the provision of optimal care to all people affected by Cystic Fibrosis and ensure they have the best possible quality of life.
MISSION
CFA represents and promotes the interests of people with CF, their families and carers by:
- Raising awareness and educating
- Advocating and lobbying, and
- Promoting CF Research in order to enhance the well being of the CF Community.
VISION
A society committed to curing CF, while providing the best possible care and quality of life for people with CF.
OBJECTIVES
- To promote change in federal policies or laws which are prejudicial to the rights or well being of people with Cystic Fibrosis.
- To be a coordinating body in the production and dissemination of national and international developments on research and matters of interest to CF organisations.
- To build an international network of contacts with acclaimed Cystic Fibrosis researchers, centres of learning and kindred organisations.
- To administer national research monies.
- To administer national community awareness and education programs. To administer, with co-operation of the States, national fundraising efforts and programs.
