Data Registry
Did you know that Cystic Fibrosis Australia runs one of the most advanced CF data registries in the world? Data registries might sound boring, but they are an incredibly powerful tool in the fight against CF! They are used for identifying the most effective treatments for each patient through the process of discovering best practices.
2010 is going to be a great year for the ACFDR, as there is a major project that will allow the ACFDR to collaborate with other international CF data registries. Once completed, this project will raise the bar considerably on CF care worldwide!
